ReviewNeurology and therapy2012
The impact of spina bifida on caregivers.
Review in Neurology and therapy, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 21 citations in OpenAlex.
- Impact of Limb Deformity Correction Surgery on Pediatric Quality of Life as Assessed by the Limb Deformity Early Onset Scoliosis Questionnaire and Limb Deformity Scoliosis Research Society Patient-Reported Outcome Measures.Journal of the Pediatric Orthopaedic Society of North America · 2026Article
- From birth to beyond: predicting incidence and timing of CSF diversion in postnatal MMC closure.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2026Article
- Understanding Disease Aetiology and Related Needs Knowledge of Parents of Children With Spina Bifida.Child: care, health and development · 2026Article
- Perspectives of Young Men With Spina Bifida on Fertility Potential and Future Parenthood.Urology · 2025Article
- The impact of the pandemic on physical and functional disabilities in children and adolescents with spina bifida.Spinal cord series and cases · 2024Article
- Parents' report on the health care management of spina bifida in early childhood.Journal of pediatric rehabilitation medicine · 2022Article
- Article
- Scope of care in the first four years of life for individuals born with myelomeningocele: A single institution experience1.Journal of pediatric rehabilitation medicine · 2021Article
- Access to health care for children with neural tube defects: Experiences of mothers in Zambia.African journal of disability · 2016Article
- A review of the social, psychological, and economic burdens experienced by people with spina bifida and their caregivers.Neurology and therapy · 2013Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionNeural tube defects (NTDs) are the second most common birth defects. Spina bifida (SB) and anencephaly make up approximately 90% of total NTDs. Given the number of infants born with an NTD each year, anyone who provides unpaid care for the child (especially caregivers) is affected. This literature review explores the humanistic burden on caregivers of people with SB, specifically myelomeningocele.
methodsA search using PubMed, PsycINFO, and Embase was performed to find studies from 1976 to 2010. Interpretative phenomenological analysis was performed on qualitative data and relevant extracts from the data were collated to form master themes.
resultsA total of 168 abstracts met the inclusion and exclusion criteria. Of these, 25 articles related to caregivers of individuals with SB. Four master themes emerged: initial diagnosis, living with an individual with SB, social support, and coping. Different aspects of caregivers' lives were found to be affected by caring for a child with SB, including activities of daily living, work impact, time consumption, parental responsibilities, confidence, feelings and emotions, mental health, stress, social impact, psychological adjustment, and relationships.
conclusionNTDs, such as SB, present a multitude of issues to caregivers. Issues that affect caregivers of individuals with SB must be addressed in order to reduce the considerable burden that SB places on the caregiver. Continued and enhanced support from health services and patient advocacy groups is needed. For example, providing additional information, support, and empathy can help parents prepare themselves for dealing with the needs of a child with SB over their lifetime.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.