ArticlePatient preference and adherence2015
Information and decision-making needs among people with affective disorders - results of an online survey.
Article in Patient preference and adherence, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 37 citations in OpenAlex.
- Association of Patient Treatment Preference With Dropout and Clinical Outcomes in Adult Psychosocial Mental Health Interventions: A Systematic Review and Meta-analysis.JAMA psychiatry · 2020Pooled it
- Improving treatment decision-making in bipolar II disorder: a phase II randomised controlled trial of an online patient decision-aid.BMC psychiatry · 2020Trial
- Effectiveness of a decision aid for patients with depression: A randomized controlled trial.Health expectations : an international journal of public participation in health care and health policy · 2017Trial
- Treatment experiences and preferences of British South Asians living with recurrent depression.PloS one · 2026Article
- Information quality, readability, and empathy of AI-generated public mental health information: a comparative evaluation of eight large language models.Frontiers in public health · 2026Article
- Artificial Intelligence for Management of Major Depression: Initial Design, Progress, and Research Plans.Alpha psychiatry · 2025Article
- Development of the PREMIUM Computerized Adaptive Testing for Measuring the Quality of Information Delivered to Patients with Severe Mental Illnesses.Journal of clinical medicine · 2022Article
- Information needs and sources of information among people with depression and anxiety: a scoping review.BMC psychiatry · 2022Article
- How do users with comorbidity perceive participation in social services? A qualitative interview study.International journal of qualitative studies on health and well-being · 2021Article
- Implementing a collaborative model in health education practice: a process evaluation of a health education programme targeting users with mental health problems.BMC health services research · 2020Article
- A qualitative exploration of service user views about using digital health interventions for self-management in severe mental health problems.BMC psychiatry · 2019Article
- Treatment alliance and adherence in bipolar disorder.World journal of psychiatry · 2018Article
- A Qualitative Exploration of Clinician Views and Experiences of Treatment Decision-Making in Bipolar II Disorder.Community mental health journal · 2017Article
- Gathering Opinions on Depression Information Needs and Preferences: Samples and Opinions in Clinic Versus Web-Based Surveys.JMIR mental health · 2017Article
- Information and decision-making needs of psychiatric patients: the perspective of relatives.PeerJ · 2017Article
- Information and Decision-Making Needs Among People with Anxiety Disorders: Results of an Online Survey.The patient · 2015Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient decision aids are one possibility for enabling and encouraging patients to participate in medical decisions.
objectiveThis paper aims to describe patients' information and decision-making needs as a prerequisite for the development of high-quality, web-based patient decision aids for affective disorders.
designWe conducted an online cross-sectional survey by using a self-administered questionnaire including items on Internet use, online health information needs, role in decision making, and important treatment decisions, performing descriptive and comparative statistical analyses.
participantsA total of 210 people with bipolar disorder/mania as well as 112 people with unipolar depression participated in the survey.
resultsBoth groups specified general information search as their most relevant information need and decisions on treatment setting (inpatient or outpatient) as well as decisions on pharmacological treatment as the most difficult treatment decisions. For participants with unipolar depression, decisions concerning psychotherapeutic treatment were also especially difficult. Most participants of both groups preferred shared decisions but experienced less shared decisions than desired. DISCUSSION AND
conclusionOur results show the importance of information for patients with affective disorders, with a focus on pharmacological treatment and on the different treatment settings, and highlight patients' requirements to be involved in the decision-making process. Since our sample reported a chronic course of disease, we do not know if our results are applicable for newly diagnosed patients. Further studies should consider how the reported needs could be addressed in health care practice.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.