ArticleJournal of medical Internet research2015
Personal electronic health records: understanding user requirements and needs in chronic cancer care.
Article in Journal of medical Internet research, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 3 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Electronic health records in Brazil: Prospects and technological challenges.Frontiers in public health · 2022Pooled it
- Functionalities and Issues in the Implementation of Personal Health Records: Systematic Review.Journal of medical Internet research · 2021Pooled it
- Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review.BMC medical informatics and decision making · 2020Pooled it
- Role of digital health in pulmonary rehabilitation and beyond: shaping the future.ERJ open research · 2023Article
- Patient empowerment through a user-centered design of an electronic personal health record: a qualitative study of user requirements in chronic kidney disease.BMC medical informatics and decision making · 2021Article
- Acceptability of a Patient Portal (Opal) in HIV Clinical Care: A Feasibility Study.Journal of personalized medicine · 2021Article
- Beyond Known Barriers-Assessing Physician Perspectives and Attitudes Toward Introducing Open Health Records in Germany: Qualitative Study.Journal of participatory medicine · 2020Article
- [Scoping review of the effectiveness of screen-to-screen-therapy compared to face-to-face-therapy on naming performance for patients with aphasia].Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen · 2020Article
- Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany.BMC medical informatics and decision making · 2020Article
- An Electronic Medication Module to Improve Health Literacy in Patients With Type 2 Diabetes Mellitus: Pilot Randomized Controlled Trial.JMIR formative research · 2020Article
- Digitalizing Health Services by Implementing a Personal Electronic Health Record in Germany: Qualitative Analysis of Fundamental Prerequisites From the Perspective of Selected Experts.Journal of medical Internet research · 2020Article
- Usefulness and Usability of a Personal Health Record and Survivorship Care Plan for Colorectal Cancer Survivors: Survey Study.JMIR cancer · 2019Article
- Developing a patient portal for haematology patients requires involvement of all stakeholders and a customised design, tailored to the individual needs.BMC medical informatics and decision making · 2019Article
- Design and Development of a Person-Centered Patient Portal Using Participatory Stakeholder Co-Design.Journal of medical Internet research · 2019Article
- Long-term experience with setup and implementation of an IHE-based image management and distribution system in intersectoral clinical routine.International journal of computer assisted radiology and surgery · 2018Article
- Utilizing a Prototype Patient-Controlled Electronic Health Record in Germany: Qualitative Analysis of User-Reported Perceptions and Perspectives.JMIR formative research · 2018Article
- A Personal Electronic Health Record: Study Protocol of a Feasibility Study on Implementation in a Real-World Health Care Setting.JMIR research protocols · 2017Article
- User Requirements for an Electronic Medical Records System for Oncology in Developing Countries: A Case Study of Uganda.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2017Article
- Complexity of care and strategies of self-management in patients with colorectal cancer.Patient preference and adherence · 2017Article
- Strengthening Interprofessional Requirements Engineering Through Action Sheets: A Pilot Study.JMIR human factors · 2016Article
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe integration of new information and communication technologies (ICTs) is becoming increasingly important in reorganizing health care. Adapting ICTs as supportive tools to users' needs and daily practices is vital for adoption and use.
objectiveIn order to develop a Web-based personal electronic health record (PEPA), we explored user requirements and needs with regard to desired information and functions.
methodsA qualitative study across health care sectors and health professions was conducted in a regional health care setting in Germany. Overall, 10 semistructured focus groups were performed, collecting views of 3 prospective user groups: patients with colorectal cancer (n=12) and representatives from patient support groups (n=2), physicians (n=17), and non-medical HCPs (n=16). Data were audio- and videotaped, transcribed verbatim, and thematically analyzed using qualitative content analysis.
resultsFor both patients and HCPs, it was central to have a tool representing the chronology of illness and its care processes, for example, patients wanted to track their long-term laboratory findings (eg, tumor markers). Designing health information in a patient accessible way was highlighted as important. Users wanted to have general and tumor-specific health information available in a PEPA. Functions such as filtering information and adding information by patients (eg, on their well-being or electronic communication with HCPs via email) were discussed.
conclusionsIn order to develop a patient/user centered tool that is tailored to user needs, it is essential to address their perspectives. A challenge for implementation will be how to design PEPA's health data in a patient accessible way. Adequate patient support and technical advice for users have to be addressed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.