ArticleBMJ open2015
Perspectives from health, social care and policy stakeholders on the value of a single self-report outcome measure across long-term conditions: a qualitative study.
Article in BMJ open, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Measuring treatment burden related to general practice in patients with multimorbidity: development and validation of a PROM.Family medicine and community health · 2025Pooled it
- Wider stakeholders' perspectives on successfully implementing electronic patient-reported outcome systems across organisations: a qualitative study in kidney care.Journal of patient-reported outcomes · 2026Article
- Living well with long-term conditions: A quantitative investigation into the influences of illness and healthcare experiences.Chronic illness · 2026Article
- Integrating patient-centred and tumour-centred cancer care: the EU-MyPath implementation project offers an innovative digital solution with care pathways.Palliative care and social practice · 2024Review
- Living well while providing support: validation of LTCQ-Carer for assessing informal carers' quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Assessing the Validity of the Long-Term Conditions Questionnaire (LTCQ) in Women During Pregnancy and the First Year Following Birth.Patient related outcome measures · 2022Article
- Exploring the use of health and wellbeing measures during pregnancy and the first year following birth in women living with pre-existing long-term conditions: qualitative interviews with women and healthcare professionals.BMC health services research · 2021Article
- Use of the Long-Term Conditions Questionnaire (LTCQ) for monitoring health-related quality of life in people affected by cognitive impairment including dementia: pilot study in UK memory clinic services.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Article
- A single patient reported outcome measure for acquired brain injury, multiple sclerosis & Parkinson's disease.PloS one · 2021Article
- Rasch analysis of the long-term conditions questionnaire (LTCQ) and development of a short-form (LTCQ-8).Health and quality of life outcomes · 2020Article
- The context of coping: a qualitative exploration of underlying inequalities that influence health services support for people living with long-term conditions.Sociology of health & illness · 2018Article
- Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England.BMJ open · 2017Article
- Performance of EQ-5D, howRu and Oxford hip & knee scores in assessing the outcome of hip and knee replacements.BMC health services research · 2016Article
- The Long-Term Conditions Questionnaire: conceptual framework and item development.Patient related outcome measures · 2016Article
- Refinement of the Long-Term Conditions Questionnaire (LTCQ): patient and expert stakeholder opinion.Patient related outcome measures · 2016Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
objectivesTo explore the views of a range of stakeholders regarding whether patient-reported outcome measures (PROMs) can be developed to measure key attributes of long-term conditions (LTCs) care in England, and the potential value of a single generic measure.
designQualitative semistructured interview study, analysed using a framework approach. PARTICIPANTS AND
settingInterviews with 31 stakeholders from primary care, secondary care, social care, policy and patient-focused voluntary organisations in England.
resultsThere was broad support for a single PROM that could be used to measure outcomes for patients with any LTCs in any health or social care setting. Interviewees identified three desired uses for a PROM: to improve the quality of individual care; to increase people's engagement in their own care; and to monitor the performance of services. Interviewees felt that a PROM for LTCs should incorporate a mixture of traditional and non-traditional domains, such as functioning, empowerment and social participation, and be codesigned with patients and professional end-users. Stakeholders emphasised the need for a PROM to be feasible for practical implementation at the individual clinical level as a first priority. A number of concerns and potential problems were identified in relation to the application and interpretation of an LTC PROM.
conclusionsThis study has demonstrated support for a single self-report outcome measure that reflects the priorities of people with LTCs, if such a measure can be shown to be meaningful and useful at the individual level. People with LTCs and professional end-users in health and social care should be involved in the development and evaluation of such a measure.
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