ReviewNeurocritical care2015
Patient Preferences and Surrogate Decision Making in Neuroscience Intensive Care Units.
Review in Neurocritical care, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 41 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Shared Decision Making to Improve Goals-of-Care Decisions for Families of Severe Acute Brain Injury Patients
Feasibility Trial of a Goals of Care Decision Aid for Families of Critically Ill Stroke Patients
Who cites it
41 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Shared Decision-Making for Patients with Stroke in Neurocritical Care: A Qualitative Meta-Synthesis.Neurocritical care · 2025Pooled it
- How acceptable is paternalism? A survey-based study of clinician and nonclinician opinions on paternalistic decision making.AJOB empirical bioethicsTrial
- Article
- Relationship between decision regret, anxiety, and depression in surrogate decision-makers for neurocritical patients with prolonged disorders of consciousness: a cross-lagged analysis.BMC psychology · 2026Article
- Nurses' Role in Transitional Care During Intensive Care Unit Family Meetings for Patients With Prolonged Mechanical Ventilation.Journal of advanced nursing · 2026Article
- Article
- Disorders of consciousness diagnosis, interventions, and prognostication for the intensivist: Report of the 2025 ISICEM roundtable.Intensive care medicine · 2026Review
- An exploratory mixed-methods study of organizational health literacy in a Neurosciences Intensive Care Unit.BMC health services research · 2025Article
- Psychosocial Support Needs and Preferences Among Family Caregivers of ICU Patients with Severe Acute Brain Injury: A Qualitative Thematic Analysis.Neurocritical care · 2025Article
- Peer-Delivered Interventions for Caregivers in the ICU with a Focus on Severe Acute Brain Injury: A Scoping Review.Neurocritical care · 2025Article
- Conversations Between Family Members and Physicians in Intensive Care Unit During Shared Decision-Making: A Qualitative Observational Study.Journal of multidisciplinary healthcare · 2025Article
- Development of web- and mobile-based shared decision-making tools in the neurological intensive care unit.Neurotherapeutics : the journal of the American Society for Experimental NeuroTherapeutics · 2025Review
- Social Determinants of Health and Limitation of Life-Sustaining Therapy in Neurocritical Care: A CHoRUS Pilot Project.Neurocritical care · 2024Article
- Navigating end-of-life decision-making in nursing: a systematic review of ethical challenges and palliative care practices.BMC nursing · 2024Article
- Thematic Analysis of Psychosocial Stressors and Adaptive Coping Strategies Among Informal Caregivers of Patients Surviving ICU Admission for Coma.Neurocritical care · 2024Article
- The Challenges in Using eHealth Decision Resources for Surrogate Decision-Making in the Intensive Care Unit.Journal of medical Internet research · 2024Review
- Article
- A Mindfulness-Based Resiliency Program for Caregivers of Patients With Severe Acute Brain Injury Transitioning Out of Critical Care: Protocol for an Open Pilot Trial.JMIR research protocols · 2023Article
- Decision Aids in the ICU: a scoping review.BMJ open · 2023Article
- Prognostic Language in Critical Neurologic Illness: A Multicenter Mixed-Methods Study.Neurology · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
In the neuroscience intensive care unit (NICU), most patients lack the capacity to make their own preferences known. This fact leads to situations where surrogate decision makers must fill the role of the patient in terms of making preference-based treatment decisions, oftentimes in challenging situations where prognosis is uncertain. The neurointensivist has a large responsibility and role to play in this shared decision-making process. This review covers how NICU patient preferences are determined through existing advance care documentation or surrogate decision makers and how the optimum roles of the physician and surrogate decision maker are addressed. We outline the process of reaching a shared decision between family and care team and describe a practice for conducting optimum family meetings based on studies of ICU families in crisis. We review challenges in the decision-making process between surrogate decision makers and medical teams in neurocritical care settings, as well as methods to ameliorate conflicts. Ultimately, the goal of shared decision making is to increase knowledge amongst surrogates and care providers, decrease decisional conflict, promote realistic expectations and preference-centered treatment strategies, and lift the emotional burden on families of neurocritical care patients.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.