ArticleHealth informatics journal2016
Exploring perceptions and use of the electronic health record by parents of children with autism spectrum disorder: A qualitative study.
Article in Health informatics journal, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- What Do Patients and Caregivers Want? A Systematic Review of User Suggestions to Improve Patient Portals.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2020Pooled it
- The usefulness and acceptability of a personal health record to children and young people living with a complex health condition: A realist review of the literature.Child: care, health and development · 2019Pooled it
- Retinal AAV8-RS1 Gene Therapy for X-Linked Retinoschisis: Initial Findings from a Phase I/IIa Trial by Intravitreal Delivery.Molecular therapy : the journal of the American Society of Gene Therapy · 2018Trial
- Parental needs and experiences with e-Health applications in chronic pediatric care - a scoping review.BMC pediatrics · 2026Article
- Designing an interoperable patient portal to augment an Advanced Nurse Practitioner service for Children with hydrocephalus.International journal of nursing studies advances · 2024Article
- The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating.Applied clinical informatics · 2023Review
- Characterization of Adult Patients with Autism Spectrum Disorder that Use Patient Portal.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2023Article
- Pain points in parents' interactions with newborn screening systems: a qualitative study.BMC pediatrics · 2022Article
- A mixed methods study to adapt and implement integrated mental healthcare for children with autism spectrum disorder.Pilot and feasibility studies · 2019Article
- Should parents see their teen's medical record? Asking about the effect on adolescent-doctor communication changes attitudes.Journal of the American Medical Informatics Association : JAMIA · 2018Article
- Patient Portal Usage in Pediatric Urology: Is it Meaningful Use for Everyone?Urology practice · 2018Article
- Adoption of a Portal for the Primary Care Management of Pediatric Asthma: A Mixed-Methods Implementation Study.Journal of medical Internet research · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
This qualitative project used structured interviews with nine parents to examine perceptions of the electronic health record (EHR) and associated patient portal in the treatment of their child's autism spectrum disorder. Thematic analysis identified six complementary themes including: Familiarity and exposure to the EHR, changing experience of care (streamlining appointments, providing more rapid medical record access, increasing clinician awareness of the complexity of their child's medical treatment, and facilitating prescriptions), portal use, patient/EHR/portal interaction, interoperability, and mother as care coordinator. While aware of the patient portal, only one-third had registered to use it and these parents reported only limited use. In general, perceptions of the electronic health record are positive, but the patient portal has yet to have needed consumer adoption. Further research and functionality are needed to increase portal registration and greater portal integration in patient care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.