ArticleHealth expectations : an international journal of public participation in health care and health policy2016
Monitoring and evaluation of patient involvement in clinical practice guideline development: lessons from the Multidisciplinary Guideline for Employment and Severe Mental Illness, the Netherlands.
Article in Health expectations : an international journal of public participation in health care and health policy, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
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Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Characteristics and quality of clinical practice guidelines for diabetic kidney disease: a systematic review.Journal of traditional Chinese medicine = Chung i tsa chih ying wen pan · 2024Pooled it
- Clinical Practice Guidelines for the Evaluation and Diagnosis of Attention-Deficit/Hyperactivity Disorder in Children and Adolescents: A systematic review of the literature.Sultan Qaboos University medical journal · 2021Pooled it
- Impact of patient involvement on clinical practice guideline development: a parallel group study.Implementation science : IS · 2018Trial
- Barriers and Facilitators to Interest-Holder Engagement in Health Guideline Development: A Qualitative Evidence Synthesis.Campbell systematic reviews · 2026Review
- Participatory development of patient-targeted guideline material in palliative care: A qualitative evaluation.Palliative care and social practice · 2026Article
- Quality assessment of clinical practice guidelines for sepsis and variations in recommendations.BMC infectious diseases · 2025Article
- Community engagement in health guidelines and other normative products: a methodological review.Bulletin of the World Health Organization · 2025Review
- Development of a practical guide for patient participation in value-based healthcare: an action research study.BMJ open · 2025Article
- The participation of lifeworld experts in Delphi processes: A reflection on method and practice.MethodsX · 2025Review
- Navigating process evaluation in co-creation: a Health CASCADE scoping review of used frameworks and assessed components.BMJ global health · 2024Article
- Safety and quality of parenteral nutrition: Areas for improvement and future perspectives.American journal of health-system pharmacy : AJHP : official journal of the American Society of Health-System Pharmacists · 2024Article
- [Participation of Patients in the Development of Clinical Guidelines: A Selective Country Comparison in a Narrative Review].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2023Review
- Patient and public involvement in the development of clinical practice guidelines: a scoping review.BMJ open · 2022Article
- Article
- Patient representatives: Crucial members of health-care working groups facing an uncertain role and conflicting expectations. A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Use of the ADAPTE method to develop a clinical guideline for the improvement of psychoses and schizophrenia care: Example of involvement and participation of patients and family caregivers.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Participation and consultation engagement strategies have complementary roles: A case study of patient and public involvement in clinical practice guideline development.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Characteristics and quality of clinical practice guidelines for depression in adults: a scoping review.BMC psychiatry · 2019Article
- Understanding Patient Preferences and Unmet Needs in Non-alcoholic Steatohepatitis (NASH): Insights from a Qualitative Online Bulletin Board Study.Advances in therapy · 2019Article
- Recommendations for patient engagement in guideline development panels: A qualitative focus group study of guideline-naïve patients.PloS one · 2017Article
Corrections and comments
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Authors and funding
3 authors.
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Abstract
objectiveThe aim of this study was to gain better insight into the quality of patient participation in the development of clinical practice guidelines and to contribute to approaches for the monitoring and evaluation of such initiatives. In addition, we explore the potential of a dialogue-based approach for reconciliation of preferences of patients and professionals in the guideline development processes.
methodsThe development of the Multidisciplinary Guideline for Employment and Severe Mental Illness in the Netherlands served as a case study. Methods for patient involvement in guideline development included the following: four patient representatives in the development group and advisory committee, two focus group discussions with patients, a dialogue session and eight case studies. To evaluate the quality of patient involvement, we developed a monitoring and evaluation framework including both process and outcome criteria. Data collection included observations, document analysis and semi-structured interviews (n = 26).
resultsThe quality of patient involvement was enhanced using different methods, reflection of patient input in the guideline text, a supportive attitude among professionals and attention to patient involvement throughout the process. The quality was lower with respect to representing the diversity of the target group, articulation of the patient perspective in the GDG, and clarity and transparency concerning methods of involvement.
conclusionsThe monitoring and evaluation framework was useful in providing detailed insights into patient involvement in guideline development. Patient involvement was evaluated as being of good quality. The dialogue-based approach appears to be a promising method for obtaining integrated stakeholder input in a multidisciplinary setting.
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