ArticlePloS one2015
Barriers in referring neonatal patients to perinatal palliative care: a French multicenter survey.
Article in PloS one, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed, 51 citations in OpenAlex.
- Priorities for research in perinatal palliative care: an international Delphi study.BMC palliative care · 2025Article
- Development and results of perinatal palliative care program: a retrospective cohort study.European journal of pediatrics · 2025Article
- Outcomes of delivery in patients with diagnosed life-limiting fetal condition and evaluation of perinatal palliative care program: a retrospective review of palliative care service over 7 years.BMC palliative care · 2025Article
- Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence.Palliative medicine · 2024Article
- Defining and quantifying population-level need for children's palliative care: findings from a rapid scoping review.BMC palliative care · 2024Article
- "Collateral beauty." Experiences and needs of professionals caring for parents continuing pregnancy after a life-limiting prenatal diagnosis: A grounded theory study.Palliative medicine · 2024Article
- Specialist perinatal palliative care: a retrospective review of antenatal referrals to a children's palliative care service over 14 years.BMC palliative care · 2023Article
- Fetal outcomes and continuity in perinatal palliative care patients at a quaternary care pediatric hospital.Journal of perinatology : official journal of the California Perinatal Association · 2023Article
- The Path Is Made by Walking-Mapping the Healthcare Pathways of Parents Continuing Pregnancy after a Severe Life-Limiting Fetal Diagnosis: A Qualitative Interview Study.Children (Basel, Switzerland) · 2022Article
- Outcomes following perinatal palliative care consultation: a retrospective review.Journal of perinatology : official journal of the California Perinatal Association · 2021Article
- Experiences from the first 10 years of a perinatal palliative care program: A retrospective chart review.Paediatrics & child health · 2021Article
- National Divergences in Perinatal Palliative Care Guidelines and Training in Tertiary NICUs.Frontiers in pediatrics · 2021Article
- Neonatal and perinatal palliative care pathway: a tertiary neonatal unit approach.BMJ paediatrics open · 2021Review
- Barriers to Perinatal Palliative Care Consultation.Frontiers in pediatrics · 2020Article
- Perinatal Palliative Care: A qualitative study evaluating the perspectives of pregnancy counselors.Palliative medicine · 2019Article
- Severe Fetal Abnormality and Outcomes of Continued Pregnancies: A French Multicenter Retrospective Study.Maternal and child health journal · 2017Article
- Evaluation of Care Providers' Attitude toward Perinatal Palliative Care and its Challenges in the Selected Teaching Hospitals of Tehran in 2019.Indian journal of palliative careArticle
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Authors and funding
7 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWhen an incurable fetal condition is detected, some women (or couples) would rather choose to continue with the pregnancy than opt for termination of pregnancy for medical reasons, which, in France, can be performed until full term. Such situations are frequently occurring and sometimes leading to the implementation of neonatal palliative care. The objectives of this study were to evaluate the practices of perinatal care french professionals in this context; to identify the potential obstacles that might interfere with the provision of an appropriate neonatal palliative care; and, from an opposite perspective, to determine the criteria that led, in some cases, to offer this type of care for prenatally diagnosed lethal abnormality.
methodsWe used an email survey sent to 434 maternal-fetal medicine specialists (MFMs) and fetal care pediatric specialists (FCPs) at 48 multidisciplinary centers for prenatal diagnosis (MCPD).
resultsForty-two multidisciplinary centers for prenatal diagnosis (87.5%) took part. In total, 102 MFMs and 112 FCPs completed the survey, yielding response rate of 49.3%. One quarter of professionals (26.2%) estimated that over 20% of fetal pathologies presenting in MCPD could correspond to a diagnosis categorized as lethal (FCPs versus MFMs: 24% vs 17.2%, p = 0.04). The mean proportion of fetal abnormalities eligible for palliative care at birth was estimated at 19.30% (± 2.4) (FCPs versus MFMs: 23.4% vs 15.2%, p = 0.029). The degree of diagnostic certainty appears to be the most influencing factor (98.1%, n = 207) in the information provided to the pregnant woman with regard to potential neonatal palliative care. The vast majority of professionals, 92.5%, supported considering the practice of palliative care as a regular option to propose antenatally.
conclusionsOur study reveals the clear need for training perinatal professionals in perinatal palliative care and for the standardization of practices in this field.
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