ArticleIndian journal of pediatrics2015
Social, Psychological and Financial Burden on Caregivers of Children with Chronic Illness: A Cross-sectional Study.
Article in Indian journal of pediatrics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers, 3 of them syntheses that pooled it.
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Who cites it
46 citing papers in PubMed, 3 syntheses or guidelines pooled it, 125 citations in OpenAlex.
- Financial hardship in families of children or adolescents with cancer: a systematic literature review.The Lancet. Oncology · 2023Pooled it
- Instruments Measuring Self-Care in Children and Young Adults With Chronic Conditions: A Systematic Review.Frontiers in pediatrics · 2022Pooled it
- Self-Care in Pediatric Patients with Chronic Conditions: A Systematic Review of Theoretical Models.International journal of environmental research and public health · 2021Pooled it
- Psychological distress and caregiver burden among caregivers of children with chronic liver disease: A cross-sectional study.BMC pediatrics · 2026Article
- Health-related quality of life of children born with very low birth weight and their caregivers in China: a cross-sectional survey.Translational pediatrics · 2026Article
- A cross-sectional study of multidimensional psychosocial stress and depression risk.Frontiers in behavioral neuroscience · 2026Article
- Exploring the quality of life of caregivers of children with sickle cell disease in a secondary health facility in Ghana.Ghana medical journal · 2025Article
- The relationship between stress, anxiety, and health literacy in parents of children with chronic gastroenterological diseases: a multi-center cross-sectional study.BMC public health · 2025Article
- Nursing interventions for improving quality of life among parents with major Thalassemic children: a scoping review.BMC nursing · 2025Article
- Care burden and quality of life among family caregivers of children with cerebral palsy in China: the mediating roles of social support and coping styles.BMC public health · 2025Article
- The well-being of mothers caregiving for children with cerebral palsy: a Tunisian cross-sectional study.The Pan African medical journal · 2025Article
- Caregiver burden, perceived stress, and social support among parents of chronically Ill children in Saudi Arabia.BMC nursing · 2024Article
- A qualitative study on the experiences of family caregivers of children with End Stage Kidney Disease (ESKD).BioPsychoSocial medicine · 2024Article
- A cross-sectional study: caregiver burden and related determinants of adult patients with β-thalassemia major in mainland China.BMC nursing · 2024Article
- Evaluation of Coping Mechanism of Mothers of Children with Chronic Diseases During Coronavirus Disease 2019 Pandemic.Florence Nightingale journal of nursing · 2024Article
- Systematic literature review of the indirect costs and humanistic burden of β-thalassemia.Therapeutic advances in hematology · 2024Review
- Psychological wellbeing among carers of children and adolescents with physical disabilities in North-Eastern Tanzania-a cross-sectional survey study.Frontiers in public health · 2024Article
- Toxic Stress as a Potential Factor Inducing Negative Emotions in Parents of Newborns and Infants with Cyanotic Congenital Heart Disease.Children (Basel, Switzerland) · 2023Article
- Group Psychotherapy for Parents of Youth with Pediatric Acute-Onset Neuropsychiatric Syndrome.Journal of clinical psychology in medical settings · 2023Article
- The Parental Stress Scale: Validity and Reliability of Gujarati Translated Version in Parents of Children with Cerebral Palsy.Journal of lifestyle medicine · 2023Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo explore social, psychological and financial burden on caregivers of chronically diseased children.
methodsParticipants were recruited from ambulatory and hospital areas in pediatrics department following informed consent. Parents who were caregivers of children 18 y or below in age with chronic illness were included. Socio-demographic details were collected using a semi structured questionnaire, adapted from Family Burden Interview Schedule (FBIS). The psychological well-being of caregivers was assessed using Patient Health Questionnaire (PHQ-9) and Generalized Anxiety Disorder (GAD-7). Descriptive analysis and ANOVA was done for comparing mean scores of responses to analyze financial, psychological and social burden across different diagnosis.
resultsA total of 204 (89 females:115 males) participated. Only 27% were receiving some benefits from government or hospital side. No depressive symptoms were reported by 25% caregivers, while 37% reported mild and 38% moderate to severe depressive symptoms. No anxiety symptoms were reported by 33%, while 50% reported mild and 17% moderate to severe anxiety symptoms. No association was seen between gender of the caregiver and depressive or anxiety symptoms. Significantly higher financial and social burden was seen in cerebral palsy and cancer groups vis-a-vis other diseases, being least in thalassemia. Disruption of routine life was highest in cancer group caregivers followed by those in cerebral palsy group.
conclusionsMost caregivers reported moderate depressive symptoms and mild to moderate anxiety symptoms. Cerebral palsy caused more social and financial burden on family vis-a-vis thalassemia. Social and financial burden on families of remaining diseases was comparable.
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