ArticleInternational journal of mental health nursing2015
Family carers' experience of caring for an older parent with severe and persistent mental illness.
Article in International journal of mental health nursing, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it, 75 citations in OpenAlex.
- Non-psychopathology Related Outcomes Among Siblings of Individuals with Mental Illness: A Systematic Review.Clinical child and family psychology review · 2021Pooled it
- Variations in Mental Distress Among Caregivers of Individuals With Chronic Illnesses and Comorbid Cognitive Impairment.American journal of preventive medicine · 2026Article
- Implementation of Positive Advanced Recovery Connections in Primary and Secondary Mental Health Care-A Registered Advanced Nurse Practitioner-Led Initiative.Journal of advanced nursing · 2025Article
- Caregiving Network Characteristics and Mental Health Care Utilization by Older Adults.Journal of the American Geriatrics Society · 2025Article
- The relationship between psychological distress and frailty in stroke patients: the mediating effect of depression.BMC psychology · 2025Article
- Caregiving burden, social support, and psychological well-being among family caregivers of older Italians: a cross-sectional study.Frontiers in public health · 2024Article
- Quality of life among caregivers of patients with severe mental illness in northwest Ethiopia, 2022: an institutional-based cross-sectional study.Frontiers in psychiatry · 2024Article
- Predictors of depression among caregivers of patients with severe mental illness in Northwest Ethiopia, 2023: an explanatory sequential mixed-method study.Frontiers in psychiatry · 2024Article
- Caring for a home-dwelling older parent with mental health problems: a narrative analysis of family caregivers' experiences.International journal of qualitative studies on health and well-being · 2023Article
- The Lived Experience of Caregiving and Perception of Service Provision among Family-Caregivers of People with Late-Stage Parkinson's: A Qualitative Study.Parkinson's disease · 2023Article
- Promoting Psychosocial Health of Family Caregivers of Patients with Chronic Mental Disorders: A Review of Challenges and Strategies.Chonnam medical journal · 2023Review
- Service Utilization, Self-Efficacy, Positive Attitude and Well-Being Among Asian American Family Caregivers of Persons with Serious Mental Illnesses.Community mental health journal · 2022Article
- Gender differences in the relationship between informal caregiving and subjective health: the mediating role of health promoting behaviors.BMC public health · 2022Article
- Feasibility of a Web-Based Psychoeducation Course and Experiences of Caregivers Living With a Person With Schizophrenia Spectrum Disorder: Mixed Methods Study.Journal of medical Internet research · 2021Article
- An Exploration of Family Caregiver Experiences of Burden and Coping While Caring for People with Mental Disorders in Saudi Arabia-A Qualitative Study.International journal of environmental research and public health · 2020Article
- Supporting change in chronic disease risk behaviours for people with a mental illness: a qualitative study of the experiences of family carers.BMC public health · 2018Article
- Affected family members' experience of, and coping with, aggression and violence within the context of problematic substance use: a qualitative study.BMC psychiatry · 2017Article
- Integrated care in German mental health services as benefit for relatives--a qualitative study.BMC psychiatry · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
While the burden of caring for older people with chronic medical illness and dementia has been well documented, considerably less is known about how carers develop the strength and resilience to sustain this important role with older family members with mental illness. The aim of the study was to understand the lived experience of primary caregivers of older people with severe and persistent mental illness, and to explore what, if anything, helps to sustain them in their caring role. An interpretative phenomenological analysis approach was adopted, and qualitative interviews were used with 30 primary caregivers. Two overarching themes, and related subthemes, were abstracted from the data. First, caring is a difficult and demanding responsibility. It affects carers adversely, emotionally, physically, socially, and financially, and their lifestyle in general. This is reflected in three subthemes: (i) physically and emotionally draining; (ii) grieving about the loss; (iii) and adverse effects on lifestyle and social relationships. Second, carers develop resilience in caring, which helps sustain them in their role, as illustrated in three subthemes: (i) caring as purposeful and satisfying; (ii) harnessing social support from others; and (iii) purposefully maintaining their own well-being. Community mental health nurses have a key role in assessing carers' needs and supporting them in their caring role.
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Registered trials
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