ArticleJournal of racial and ethnic health disparities2015
A Model of Cancer Clinical Trial Decision-making Informed by African-American Cancer Patients.
Article in Journal of racial and ethnic health disparities, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04683510 (Increasing Recruitment of Underrepresented Cancer Survivors With Awareness Enhancing Interventions), which is not on this map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Increasing Recruitment of Underrepresented Cancer Survivors With Awareness Enhancing Interventions
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- Exploring Racial Disparities in Awareness and Perceptions of Oncology Clinical Trials: Cross-Sectional Analysis of Baseline Data From the mychoice Study.JMIR cancer · 2024Trial
- Faith, Culture, and Cancer: A Qualitative Study Exploring Muslim Women's Perspectives on Clinical Trials in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Behind the Numbers: Cancer Survivor Recruitment by Demographics and Clinical Status.Cancer medicine · 2026Article
- A Formative Evaluation of Interventions to Enhance Clinical Trial Diversity Guided by the Socioecological Model.Cancers · 2025Article
- Understanding Inclusion and Participation of People From Black African Diaspora Communities in Health and Care Research: A Realist Review.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- Winning hearts & minds: prostate cancer outreach and clinical trial enrollment in minority men.Translational cancer research · 2024Review
- Diversity of Participation in Clinical Trials and Influencing Factors: Findings from the Health Information National Trends Survey 2020.Journal of general internal medicine · 2023Observational
- Associations Between Race/Ethnicity, Language, and Enrollment on Cancer Research Studies.The oncologist · 2023Article
- Behavioural approaches to recruitment and retention in clinical trials: a systematic mapping review.BMJ open · 2022Article
- Update to 2019-2022 ONS Research Agenda: Rapid Review to Address Structural Racism and Health Inequities.Oncology nursing forum · 2021Review
- Article
- Perceived Institutional Barriers Among Clinical and Research Professionals: Minority Participation in Oncology Clinical Trials.JCO oncology practice · 2021Article
- African American participation in cancer clinical trials.Ecancermedicalscience · 2021Article
- Patient navigation and clinical trial participation: A randomized controlled trial design.Contemporary clinical trials communications · 2018Article
- Pain in low-income older women with disabilities: a qualitative descriptive study.Journal of women & agingArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundClinical trials are critical to advancing cancer treatment. Minority populations are underrepresented among trial participants, and there is limited understanding of their decision-making process and key determinants of decision outcomes regarding trial participation.
methodsTo understand research decision-making among clinical trial-eligible African-American cancer patients at Johns Hopkins, we conducted seven focus groups (n=32) with trial-offered patients ≥ 18 years diagnosed with lung, breast, prostate, or colorectal cancer ≤ 5 years. Three "acceptor" and four "decliner" focus groups were conducted. Questions addressed: attitudes towards clinical trials, reasons for accepting or declining participation, and recommendations to improve minority recruitment and enrollment. Data were transcribed and analyzed using traditional approaches to content and thematic analysis in NVivo 9.0. Data coding resulted in themes that supported model construction.
resultsParticipant experiences revealed the following themes when describing the decision-making process: Information gathering, Intrapersonal perspectives, and Interpersonal influences. Decision outcomes included the presence or absence of decision regret and satisfaction. From these themes, we generated a Model of Cancer Clinical Trial Decision-making.
conclusionOur model should be tested in hypothesis-driven research to elucidate factors and processes influencing decision balance and outcomes of trial-related decision-making. The model should also be tested in other disparities populations and for diagnoses other than cancer.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.