Evidence map›Paper›PMID 25958037›Full record

ArticleEuropean journal of cancer (Oxford, England : 1990)2015

Survivorship after childhood cancer: PanCare: a European Network to promote optimal long-term care.

Lars Hjorth, Riccardo Haupt, Roderick Skinner, Desiree Grabow, Julianne Byrne, Sabine Karner, Gill Levitt, Gisela Michel, Helena van der Pal, Edit Bárdi and 17 more

Registry-linked trialAbstract read
In one paragraph

Article in European journal of cancer (Oxford, England : 1990), 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03297034 (Swiss Childhood Cancer Survivor Study), which is not on this map. Cited by 48 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
48citing papers in PubMed, 1 pooled it
24.1field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03297034 recruitingnot on this map

Swiss Childhood Cancer Survivor Study (SCCSS)

Typeobservational_patient_registrySponsorUniversity of BernRan2007 to 2050Enrolled4,136ConditionsChildhood Cancer
3 · Its place in the literature

Who cites it

48 citing papers in PubMed, 1 synthesis or guideline pooled it, 128 citations in OpenAlex.

  1. Guideline
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  9. Paediatric very rare tumours registration and management in European countries with low health expenditure average rates.Clinical & translational oncology : official publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors at 19 institutions in 12 countries.

Lars HjorthSkåne University Hospital, Lund University, Lund, Sweden. Electronic address: Lars.Hjorth@med.lu.se.
Riccardo HauptIstituto Giannina Gaslini, Genova, Italy.
Roderick SkinnerGreat North Children's Hospital, Newcastle University, Newcastle, UK.
Desiree GrabowGerman Childhood Cancer Registry, University Medical Centre Mainz, Germany.
Julianne ByrneBoyne Research Institute, Drogheda, Ireland.
Sabine KarnerAustrian Childhood Cancer Organisation, Vienna, Austria.
Gill LevittGreat Ormond Street Hospital NHS Foundation Trust, London, UK.
Gisela MichelUniversity of Lucerne, Lucerne, Switzerland.
Helena van der PalAcademic Medical Centre, Amsterdam, Netherlands.
Edit Bárdi2nd Department of Pediatrics, Semmelweis University, Budapest, Hungary.
Jörn D BeckKinder und Jugendklinik, Universität Erlangen, CCC ErMN, Erlangen, Germany.
Florent de VathaireInstitut Gustave Roussy, Paris, France.
Stefan EssigInstitute of Primary and Community Care, Lucerne, Switzerland.
Eva FreySt. Anna Children's Hospital, Vienna, Austria.
Stanislaw GarwiczSkåne University Hospital, Lund University, Lund, Sweden.
Mike HawkinsUniversity of Birmingham, Birmingham, UK.
Zsuzsanna Jakab2nd Department of Pediatrics, Semmelweis University, Budapest, Hungary.
Momcilo JankovicFondazione MBBM, Monza, Italy.
Bernarda KazanowskaWroclaw University, Wroclaw, Poland.
Tomas KepakUniversity Hospital Brno, Brno, Czech Republic.
Leontien KremerAcademic Medical Centre, Amsterdam, Netherlands.
Herwig LacknerMedical University of Graz, Graz, Austria.
Elaine SugdenSt Hilda's College, Oxford, UK.
Monica TerenzianiFondazione IRCCS Istituto Nazionale dei Tumori Milano, Italy.
Lorna Zadravec ZaletelInstitute of Oncology, Ljubljana, Slovenia.
Peter KaatschGerman Childhood Cancer Registry, University Medical Centre Mainz, Germany.
PanCare Network
Amsterdam UMC Location University of Amsterdam · NLJohannes Gutenberg University Mainz · DELund University · SESemmelweis University · HUBoyne Research Institute · IEFondazione IRCCS Istituto Nazionale dei Tumori · ITFondazione Lanza · ITGreat North Children's Hospital · GBGreat Ormond Street Hospital for Children NHS Foundation Trust · GBInstitute of Oncology Ljubljana · SIInstitut Gustave Roussy · FRIstituto Giannina Gaslini · ITMedical University of Graz · ATSt Anna Children's Hospital · ATUniversitätsklinikum Erlangen · DEUniversity Hospital Brno · CZUniversity of Birmingham · GBUniversity of Lucerne · CHUniversity of Teacher Education Lucerne · CH

Funding

Swiss National Science Foundation 133897
6 · The paper itself

Abstract

Survival after childhood cancer has improved substantially over recent decades. Although cancer in childhood is rare increasingly effective treatments have led to a growing number of long-term survivors. It is estimated that there are between 300,000 and 500,000 childhood cancer survivors in Europe. Such good survival prospects raise important questions relating to late effects of treatment for cancer. Research has shown that the majority will suffer adverse health outcomes and premature mortality compared with the general population. While chronic health conditions are common among childhood cancer survivors, each specific type of late effect is very rare. Long-term effects must be considered particularly when addressing complex multimodality treatments, and taking into account the interaction between aspects of treatment and genotype. The PanCare Network was set up across Europe in order to effectively answer many of these questions and thereby improve the care and quality of life of survivors. The need for a structured long-term follow-up system after childhood cancer has been recognised for some time and strategies for implementation have been developed, first nationally and then trans-nationally, across Europe. Since its first meeting in Lund in 2008, the goal of the PanCare Network has been to coordinate and implement these strategies to ensure that every European survivor of childhood and adolescent cancer receives optimal long-term care. This paper will outline the structure and work of the PanCare Network, including the results of several European surveys, the start of two EU-funded projects and interactions with relevant stakeholders and related projects.

Indexed as

AdolescentChildChild, PreschoolEuropeFemaleHumansLong-Term CareMaleNeoplasmsQuality of LifeSurvivorsTreatment OutcomeChildhood cancerLate effectsLong-term careLong-term follow-upSurvivorship

Identifiers

PMID25958037
PMCPMC5916870
OpenAlexW1801555402

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.