ArticlePalliative medicine2015
Results of a transparent expert consultation on patient and public involvement in palliative care research.
Article in Palliative medicine, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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Who cites it
23 citing papers in PubMed.
- Prioritizing quality of geriatric rehabilitation from the older adults' perspective: A nominal group technique study.Clinical rehabilitation · 2026Article
- A cognitive accessibility review of national palliative care resources with people with cognitive disabilities.BMC palliative care · 2026Article
- Coproducing a conceptual understanding of unmet palliative care needs: stakeholder workshops using modified nominal group technique.BMC palliative care · 2025Article
- Reflections on the impact of the Lived Experience Group in the James Lind Alliance Palliative and End of Life Care Priority Setting Partnership Refresh.Research involvement and engagement · 2025Article
- Understanding Experiences of Telehealth in Palliative Care: Photo Interview Study.JMIR human factors · 2025Article
- Development of the TIFFIN recommendations for co-producing palliative and end-of-life care research with individuals with lived experience of homelessness: A qualitative study.Palliative medicine · 2024Article
- Scoping review of models and frameworks of patient engagement in health services research.BMJ open · 2022Article
- Using nominal group technique to advance power assisted exercise equipment for people with stroke.Research involvement and engagement · 2021Article
- Long-term consumer involvement in cancer research: Working towards partnership.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Article
- Digital health interventions in palliative care: a systematic meta-review.NPJ digital medicine · 2021Review
- Reflective insights from developing a palliative care children and young people's advisory group.Palliative medicine · 2021Article
- Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation.Palliative medicine · 2021Article
- Learning from patient involvement in a clinical study analyzing PET/CT in women with advanced breast cancer.Research involvement and engagement · 2020Article
- Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review.Palliative medicine · 2019Review
- Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique.Palliative medicine · 2019Article
- Preparing researchers for patient and public involvement in scientific research: Development of a hands-on learning approach through action research.Health expectations : an international journal of public participation in health care and health policy · 2018Article
- Enhanced patient research participation: a Photovoice study in Blantyre Malawi.BMJ supportive & palliative care · 2018Article
- Effect of early palliative care on quality of life in patients with non-small-cell lung cancer.Current oncology (Toronto, Ont.) · 2018Article
- Primary palliative Care in General Practice - study protocol of a three-stage mixed-methods organizational health services research study.BMC palliative care · 2018Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
backgroundSupport and evidence for patient, unpaid caregiver and public involvement in research (user involvement) are growing. Consensus on how best to involve users in palliative care research is lacking.
aimTo determine an optimal user-involvement model for palliative care research.
designWe hosted a consultation workshop using expert presentations, discussion and nominal group technique to generate recommendations and consensus on agreement of importance. A total of 35 users and 32 researchers were approached to attend the workshop, which included break-out groups and a ranking exercise. Descriptive statistical analysis to establish consensus and highlight divergence was applied. Qualitative analysis of discussions was completed to aid interpretation of findings. SETTING/
participantsParticipants involved in palliative care research were invited to a global research institute, UK.
resultsA total of 12 users and 5 researchers participated. Users wanted their involvement to be more visible, including during dissemination, with a greater emphasis on the difference their involvement makes. Researchers wanted to improve productivity, relevance and quality through involvement. Users and researchers agreed that an optimal model should consist of (a) early involvement to ensure meaningful involvement and impact and (b) diverse virtual and face-to-face involvement methods to ensure flexibility.
conclusionFor involvement in palliative care research to succeed, early and flexible involvement is required. Researchers should advertise opportunities for involvement and promote impact of involvement via dissemination plans. Users should prioritise adding value to research through enhancing productivity, quality and relevance. More research is needed not only to inform implementation and ensure effectiveness but also to investigate the cost-effectiveness of involvement in palliative care research.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.