ArticleJournal of diabetes science and technology2015
Youth-Perceived Burden of Type 1 Diabetes: Problem Areas in Diabetes Survey-Pediatric Version (PAID-Peds).
Article in Journal of diabetes science and technology, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03736083 (Introducing Continuous Glucose Monitoring Technology at Diagnosis in Pediatric Type 1 Diabetes), which is not on this map. Cited by 47 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Introducing Continuous Glucose Monitoring Technology at Diagnosis in Pediatric Type 1 Diabetes: A Proof of Concept Study
Who cites it
47 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The effect of automated insulin delivery system use on diabetes distress in people with type 1 diabetes and their caregivers: A systematic review and meta-analysis.Diabetic medicine : a journal of the British Diabetic Association · 2025Pooled it
- Intermittently Scanned and Continuous Glucose Monitor Systems: A Systematic Review on Psychological Outcomes in Pediatric Patients.Frontiers in pediatrics · 2021Pooled it
- Adolescent- and Young Adult-Reported Outcomes and Use of Continuous Glucose Monitoring Features: A Report from the CITY Trial.Pediatric diabetes · 2023Trial
- Trial
- Youth and parent measures of self-efficacy for continuous glucose monitoring: survey psychometric properties.Diabetes technology & therapeutics · 2015Trial
- A Phase 2 Trial of Frexalimab, a CD40L Antagonist, in Adolescents and Adults With Recent-Onset Type 1 Diabetes (FABULINUS): Rationale and Study Design.Diabetes, obesity & metabolism · 2026Article
- An AI-Assisted Tool to Predict Continuous Glucose Monitor Adherence in Children With Type 1 Diabetes in Oman: Protocol for a Multiphase Mixed Methods Translational Study.JMIR research protocols · 2026Article
- Development of the Pediatric Type 2 Diabetes Impact Measure (P-TIM).Journal of patient-reported outcomes · 2026Article
- School-partnered collaborative care intervention for young children with type 1 diabetes: A pilot and feasibility protocol.Contemporary clinical trials · 2026Article
- HbA1c and Disordered Eating Behaviors Trends in Adolescents with Type 1 Diabetes following the Implementation of Insulin Pump Therapy.Hormone research in paediatrics · 2026Article
- Building the evidence to address disparities in type 1 diabetes (BEAD-T1D): methods and design of a study examining barriers and promoters to diabetes device use in families with public insurance.Frontiers in endocrinology · 2026Article
- Psychological and self care outcomes for children and adolescents living with type 1 diabetes and their caregivers attending diabetes camp: A mixed methods study.Diabetic medicine : a journal of the British Diabetic Association · 2025Article
- Diabetes-related distress over time and its associations with glucose levels in school-aged children.BMJ open diabetes research & care · 2025Article
- Article
- Spanish Validation of the Problem Area in Diabetes-Pediatric Version Survey and Its Weak Association with Metabolic Control Parameters in Pediatric Diabetes: A Cross-Sectional Multicenter Study.Journal of clinical medicine · 2025Article
- The Interrelationship of Diabetes Distress and Glycemic Outcomes Over Time in Adolescents With Type 1 Diabetes.Clinical diabetes : a publication of the American Diabetes Association · 2025Article
- Updated Psychosocial Surveys With Continuous Glucose Monitoring Items for Youth With Type 1 Diabetes and Their Caregivers.Journal of diabetes science and technology · 2024Article
- Study protocol of translation into Spanish and cross-cultural adaptation and validation of the problem areas in diabetes-Pediatric version (PAID-Peds) survey.Nursing open · 2024Review
- "I Think I Could Have Used It Better": Experiences of Youth with High HbA1c Commencing Advanced Hybrid Closed-Loop Therapy in a Clinical Trial Setting-A Qualitative Research.Pediatric diabetes · 2024Article
- Prevalence and predictors of diabetes distress and depression in people with type 1 diabetes.Frontiers in psychiatry · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
backgroundManagement of type 1 diabetes in childhood can be challenging and overwhelming. Despite availability of advanced treatments and new technologies, the burden has not decreased as current approaches to intensive therapy are not without need for patient involvement. This study aimed to design and validate a measure of youth-reported burden related to type 1 diabetes management.
methodA multidisciplinary pediatric diabetes team designed the survey, based on a previously validated parent measure of diabetes-related burden (PAID-PR); survey revisions and pilot testing followed. The 20-item PAID-Peds assesses burden over the past month. Youth with type 1 diabetes (N = 126, ages 8-17, intensively treated with insulin pump therapy or multiple daily injections) completed the new survey, along with other surveys; parents completed companion measures. Electronic medical records and blood glucose meter download provided other salient data.
resultsThe PAID-Peds displayed excellent internal consistency (α = .94) and acceptable test-retest reliability (intraclass correlation .66, P < .0001). The PAID-Peds correlated significantly with both youth and parent reports of diabetes-specific family conflict, negative affect around blood glucose monitoring, depressive symptomatology, trait anxiety, and quality of life. It was not correlated with demographic or clinical characteristics of the youth.
conclusionsThis new measure, the PAID-Peds, of youth-reported burden related to type 1 diabetes may have clinical and research utility, particularly in the current era of emerging diabetes technologies that require ongoing patient input.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.