ArticleEuropean journal of human genetics : EJHG2016
Telemedicine uptake among Genetics Professionals in Europe: room for expansion.
Article in European journal of human genetics : EJHG, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Videoconferencing to deliver genetics services: a systematic review of telegenetics in light of the COVID-19 pandemic.Genetics in medicine : official journal of the American College of Medical Genetics · 2021Pooled it
- Patient experiences in receiving telegenetics care for inherited cardiovascular diseases.Journal of community genetics · 2024Article
- Rapid Implementation of Telegenetic Counseling in the COVID-19 and Swedish Healthcare Context: A Feasibility Study.Frontiers in health services · 2022Article
- Far and wide: Exploring provider utilization of remote service provision for genome-wide sequencing in Canada.Molecular genetics & genomic medicine · 2021Article
- Barriers and strategies to integrate medical genetics and primary care in underserved populations: a scoping review.Journal of community genetics · 2021Article
- Telemedicine - chances and challenges for medical genetics in Germany.Medizinische Genetik : Mitteilungsblatt des Berufsverbandes Medizinische Genetik e.V · 2021Article
- Experiences from the epicenter: Professional impact of the COVID-19 pandemic on genetic counselors in New York.American journal of medical genetics. Part C, Seminars in medical genetics · 2021Article
- Use of Telemedicine for the Physical Examination of Children With Fetal Alcohol Spectrum Disorders.Alcoholism, clinical and experimental research · 2021Article
- Rapid deployment of a telemedicine care model for genetics and metabolism during COVID-19.American journal of medical genetics. Part A · 2021Article
- Experiences with offering pro bono medical genetics services in the West Indies: Benefits to patients, physicians, and the community.American journal of medical genetics. Part C, Seminars in medical genetics · 2020Article
- Genetic counseling during COVID-19 pandemic: Tuscany experience.Molecular genetics & genomic medicine · 2020Article
- A pilot eConsultation service in Eastern Ontario: bridging clinical genetics and primary care.European journal of human genetics : EJHG · 2019Article
- Factors influencing use of telegenetic counseling: perceptions of health care professionals in Sweden.Journal of community genetics · 2019Article
- Implementing a Virtual Health Telemedicine Program in a Community Setting.Journal of genetic counseling · 2018Article
- Genetic and Genomic Consultation: Are We Ready for Direct-to-Consumer Telegenetics?Frontiers in genetics · 2018Article
- Telegenetics: an Update on Availability and Use of Telemedicine in Clinical Genetics Service.Journal of medical systems · 2017Article
- Public preferences for communicating personal genomic risk information: a focus group study.Health expectations : an international journal of public participation in health care and health policy · 2016Article
- Utilizing Remote Real-Time Videoconferencing to Expand Access to Cancer Genetic Services in Community Practices: A Multicenter Feasibility Study.Journal of medical Internet research · 2016Article
- mHealth in Sub-Saharan Africa and Europe: Context of current health, healthcare status, and demographic structure.Digital healthReview
- Fair allocation of telemedical counseling services in early detection of Alzheimer's disease: Empirically informed ethical considerations.Alzheimer's & dementia (Amsterdam, Netherlands)Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Today's economic challenges and the changing landscape of clinical genetics are forcing us to consider alternative ways of providing genetic services, to comply with budget limitations and at the same time meeting the demands of increasing patient numbers and patient-centered care delivery. Telegenetics could be an effective and efficient way of counseling, but its use in Europe is not widely reported, nor is there evidence of international collaboration. We conducted an online survey among 929 genetics professionals, to explore the current availability and use of different telegenetics modalities in Europe. Our questionnaire was completed by 104 clinically active European genetics professionals. Telephone genetic counseling was used by 17% of respondents. Videoconferencing facilities were available to 24%, but only 9% of them used these for patient counseling. Various barriers to availability and use were cited, ranging from practical constraints, lack of professional support/knowledge, to lack of perceived suitability and need. The results show that telegenetics modalities are not currently in widespread use by our respondents, in part due to perceived barriers. To meet the changing economic, genetic, and societal circumstances, we recommend consideration of greater integration of telegenetics into regular clinical genetic care, to supplement existing care modalities. Professional cooperation, sharing knowledge, and establishing guidelines on a national and international level could contribute to successful and more widespread implementation of telegenetics. However, the perceived practical and regulatory barriers have to be overcome.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.