ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2015
Medical Communication-related Informational Need and Resource Preferences Among Family Caregivers for Head and Neck Cancer Patients.
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
26 citing papers in PubMed, 54 citations in OpenAlex.
- A Pilot Study of a Primary Palliative Care Communication Intervention (PRECURSOR) to Address Supportive Oncology Needs for Patients With Incurable Cancer and Their Caregivers in the Outpatient Oncology Setting.Cancer control : journal of the Moffitt Cancer CenterTrial
- Family caregivers' perspectives on communication with cancer care providers.Journal of psychosocial oncologyTrial
- Perspectives on Accessing Mental Health Supports for Youth Living With Post-Traumatic Stress Symptoms After a Solid Organ Transplant.Pediatric transplantation · 2025Article
- Information Needs of Patients With Head and Neck Cancer and Their Supports in Relation to Treatment Management Choices: Scoping Review.JMIR cancer · 2025Article
- Improving communication skills in caregivers: an adaptation and pilot test of a brief training module for caregivers of people with cancer in Australia.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Communication between Caregivers of Adults with Cancer and Healthcare Professionals: a Review of Communication Experiences, Associated Factors, Outcomes, and Interventions.Current oncology reports · 2024Review
- Unmet supportive care needs among informal caregivers of patients with head and neck cancer in the first 2 years after diagnosis and treatment: a prospective cohort study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Caregiver Burden, Psychological Distress and Quality of Life among Informal Caregivers of Patients with Head and Neck Cancer: A Longitudinal Study.International journal of environmental research and public health · 2022Article
- Prospective application of the interdisciplinary bedside rounding checklist 'TEMP' is associated with reduced infections and length of hospital stay.BMJ open quality · 2022Review
- Head and neck cancer survivorship consensus statement from the American Head and Neck Society.Laryngoscope investigative otolaryngology · 2022Review
- Entrustment in physician-patient communication: a modified Delphi study using the EPA approach.BMC medical education · 2021Article
- Toward Engaging Caregivers: Inclusion in Care and Receipt of Information and Training among Caregivers for Cancer Patients Who Have Been Hospitalized.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021Article
- Developing an Integrated Caregiver Patient-Portal System.Healthcare (Basel, Switzerland) · 2021Article
- Rehabilitation Needs of Head and Neck Cancer Patients and Stakeholders: Case Study.Frontiers in oncology · 2021Article
- Doctor-Patient Cancer Screening Communications among Church-based Chinese Adults - The Role of Caregiver Experience and Family History.Asian Pacific journal of cancer prevention : APJCP · 2021Article
- Communication Needs of Cancer Patients and/or Caregivers: A Critical Literature Review.Journal of oncology · 2020Review
- Dyadic Interventions for Cancer Survivors and Caregivers: State of the Science and New Directions.Seminars in oncology nursing · 2019Review
- Caring for the person with cancer and the role of digital technology in supporting carers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- Development of a Smartphone App for Informal Carers of People With Cancer: Processes and Learnings.JMIR formative research · 2019Article
- Head and Neck Cancer Survivors: Specific Needs and Their Implications for Survivorship Care Planning.Clinical journal of oncology nursing · 2018Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
Despite advances in treatment, head and neck cancer (HNC) patients often experience considerable functional impairment during and following treatment. As a result, family caregivers are essential in a patient's recovery; however, few caregivers are well-prepared to handle the extensive caregiving needs of this patient population. To date, little is known about HNC caregivers' informational needs in this role. Thus, we surveyed a sample of HNC caregivers about their informational needs including those related to interacting in the medical context as a caregiver and meeting patient needs. We also asked these caregivers their preferences for obtaining caregiving information. We conducted a cross-sectional study of 59 family caregivers for HNC patients who had completed radiation therapy at a comprehensive cancer center. The majority of caregivers (74.6%) reported having high informational need at diagnosis related to interacting as a caregiver. Although the need for such information decreased over time, over half still had a high need for information at treatment end. Importantly, caregivers who desired information about reducing patient pain and distress also reported having greater informational needs on issues related to interacting in the medical context. Further, the caregivers most often preferred to receive information from health-care professionals as a first source. However, preferring an informal (e.g., Internet) resource at first was significantly associated with needing information on how to talk to a doctor or nurse. The development of evidence-based resources and tools for HNC caregivers as well as clinicians may help caregivers more effectively manage patient symptoms and warrants further attention. Further, Internet resources may represent an effective resource for providing caregivers with strategies toward enhancing communication with healthcare professionals.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.