ArticleJournal of advanced nursing2015
Young women with a disorder of sex development: learning to share information with health professionals, friends and intimate partners about bodily differences and infertility.
Article in Journal of advanced nursing, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.
- A Systematic Review of the Health and Healthcare Inequalities for People with Intersex Variance.International journal of environmental research and public health · 2020Pooled it
- Stigma in differences of sex development: a scoping review.Journal of pediatric psychology · 2025Article
- Finding acceptance: How adolescents and young adults with Klinefelter Syndrome navigate identity, disclosure, and support.Journal of genetic counseling · 2025Article
- Challenges in Transition of Care for People with Variations in Sex Characteristics in the European Context.Healthcare (Basel, Switzerland) · 2024Article
- Medicalization of intersex and resistance: a commentary on Conway.International journal of impotence research · 2023Article
- Whose responsibility is it to talk with children and young people about intersex/differences in sex development? Young people's, caregivers' and health professionals' perspectives.Frontiers in urology · 2023Article
- Lifespan healthcare transitions among individuals with intersex traits in Canada: a mixed-methods and qualitative study.BMJ open · 2022Review
- Fertility counseling and preservation: considerations for the pediatric endocrinologist.Translational pediatrics · 2017Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo understand the experiences of young women with a disorder of sex development when sharing information about their body with healthcare professionals, friends and intimate partners.
backgroundDisorders of sex development are lifelong conditions that create bodily difference such as absence of reproductive organs which can impact on young women's fertility and sexual experiences.
designInterpretive phenomenological analysis with thirteen young women (14-19 years old) with a disorder of sex development.
methodsThe young women chose to participate in either a face-to-face semi-structured interview or to complete a paper diary between 2011-2012.
resultsA superordinate theme focusing on the meaning bodily differences held for these young women is presented through three themes: self-awareness and communicating this to others; actualizing intimacy; and expressing meaning of altered fertility to self or professionals or partners. During early adolescence, the young women were guarded and reticent about sharing personal information about their disorder of sex development but as they moved towards adulthood, some of the young women learnt to engage in conversations with more confidence. Frustrations about their bodily differences and the limitations of their bodies were talked about as factors which limited physical spontaneity, impacted on their perceived sexual fulfilment and challenged the development or sustainability of close friendships or intimate partnerships. The young women wanted empathic, sensitive support from knowledgeable health professionals to help them understand their bodies.
conclusionAttachment and a 'sense of being' were the concepts that were closely linked to the young women's development of a secure identity.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.