ArticleBMC medical informatics and decision making2015
Cultural adaptation of a shared decision making tool with Aboriginal women: a qualitative study.
Article in BMC medical informatics and decision making, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
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Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Interventions for Indigenous Peoples making health decisions: a systematic review.Archives of public health = Archives belges de sante publique · 2023Pooled it
- Pooled it
- A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq.International journal of circumpolar health · 2025Article
- The Heart Health Yarning Tool: Co-Designing a Shared Decision-Making Tool With Aboriginal and Torres Strait Islander People for Cardiovascular Disease Prevention and Risk Management.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Translation and cultural adaptation of evidence-informed leaflets on the work-health interface: a pragmatic approach to cultural adaptation.Primary health care research & development · 2024Article
- Exploring methods for creating or adapting knowledge mobilization products for culturally and linguistically diverse audiences: a scoping review.Archives of public health = Archives belges de sante publique · 2024Article
- Co-production of a systematic review on decision coaching: a mixed methods case study within a review.Systematic reviews · 2024Article
- Twenty-one years of the International Shared Decision Making Conference: lessons learnt and future priorities.BMJ evidence-based medicine · 2024Article
- Understanding how and under what circumstances decision coaching works for people making healthcare decisions: a realist review.BMC medical informatics and decision making · 2022Review
- Decision Needs and Preferred Strategies for Shared Decision-Making in Rheumatoid Arthritis: Perspectives of Canadian Urban Indigenous Women.Arthritis care & research · 2022Article
- Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients.The patient · 2022Article
- Polypharmacy Exposure, Aging Populations, and COVID-19: Considerations for Healthcare Providers and Public Health Practitioners in Africa.International journal of environmental research and public health · 2021Article
- Collaborative Relationship-Focused Occupational Therapy: Evolving Lexicon and Practice.Canadian journal of occupational therapy. Revue canadienne d'ergotherapie · 2021Article
- Participatory design and qualitative evaluation of a decision guide for workplace human immunodeficiency virus self-disclosure: The importance of a socio-ecological perspective.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Experiences of Inuit in Canada who travel from remote settings for cancer care and impacts on decision making.BMC health services research · 2021Article
- Development of a novel gout treatment patient decision aid by patient and physician: A qualitative research study.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Towards attainment of Indigenous health through empowerment: resetting health systems, services and provider approaches.BMJ global health · 2021Review
- Development and assessment of a verbal response scale for the Patient-Specific Functional Scale (PSFS) in a low-literacy, non-western population.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Factors Influencing Pregnant Women's Use of Patient Decision Aids and Decision Making on Prenatal Screening: A Qualitative Study.Journal of family & reproductive health · 2020Article
- What older adults and their caregivers need for making better health-related decisions at home: a participatory mixed methods protocol.BMJ open · 2020Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundShared decision making (SDM) may narrow health equity gaps experienced by Aboriginal women. SDM tools such as patient decision aids can facilitate SDM between the client and health care providers; SDM tools for use in Western health care settings have not yet been developed for and with Aboriginal populations. This study describes the adaptation and usability testing of a SDM tool, the Ottawa Personal Decision Guide (OPDG), to support decision making by Aboriginal women.
methodsAn interpretive descriptive qualitative study was structured by the Ottawa Decision Support Framework and used a postcolonial theoretical lens. An advisory group was established with representation from the Aboriginal community and used a mutually agreed-upon ethical framework. Eligible participants were Aboriginal women at Minwaashin Lodge. First, the OPDG was discussed in focus groups using a semi-structured interview guide. Then, individual usability interviews were conducted using a semi-structured interview guide with decision coaching. Iterative adaptations to the OPDG were made during focus groups and usability interviews until saturation was reached. Transcripts were coded using thematic analysis and themes confirmed in collaboration with an advisory group.
resultsAboriginal women 20 to 60 years of age and self-identifying as First Nations, Métis, or Inuit participated in two focus groups (n = 13) or usability interviews (n = 6). Seven themes were developed that either reflected or affirmed OPDG adaptions: 1) "This paper makes it hard for me to show that I am capable of making decisions"; 2) "I am responsible for my decisions"; 3) "My past and current experiences affect the way I make decisions"; 4) "People need to talk with people"; 5) "I need to fully participate in making my decisions"; 6) "I need to explore my decision in a meaningful way"; 7) "I need respect for my traditional learning and communication style".
conclusionsAdaptations resulted in a culturally adapted version of the OPDG that better met the needs of Aboriginal women participants and was more accessible with respect to health literacy assumptions. Decision coaching was identified as required to enhance engagement in the decision making process and using the adapted OPDG as a talking guide.
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