Evidence map›Paper›PMID 25885778›Full record

ArticleBMC public health2015

Knowledge, attitudes, and preferences of healthy young adults regarding advance care planning: a focus group study of university students in Pittsburgh, USA.

Dio Kavalieratos, Natalie C Ernecoff, Jessica Keim-Malpass, Howard B Degenholtz

Open access · goldAbstract read
In one paragraph

Article in BMC public health, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
2.6field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 53 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 1 country.

Dio KavalieratosSection of Palliative Care and Medical Ethics, Division of General Internal Medicine, University of Pittsburgh School of Medicine, 230 McKee Place, Suite 600, Pittsburgh, PA, 15213, USA. diok@pitt.edu.
Natalie C ErnecoffDepartment of Behavioral and Community Health Sciences, Graduate School of Public Health, University of Pittsburgh, Pittsburgh, PA, USA. nce4@pitt.edu.
Jessica Keim-MalpassSchool of Nursing, University of Virginia, Charlottesville, VA, USA. jlk2t@virginia.edu.
Howard B DegenholtzDepartment of Health Policy and Management, Graduate School of Public Health, University of Pittsburgh, Pittsburgh, PA, USA. degen@pitt.edu.
University of Pittsburgh · USUniversity of Virginia · US

Funding

Patient-Centered Outcomes Research (PCOR) Scholars ProgramK12HS022989 · AHRQ · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI KAPOOR, WISHWA N · 2014 to 2018
$3.9M
INTEGRATING PALLIATIVE CARE WITH DISEASE MANAGEMENT TO IMPROVE OUTCOMES AMONG PATIENTS WITH ADVANCED HEART FAILURE: INTERVENTIONAL RESEARCH CAREER DEVELOPMENTK01HL133466 · NHLBI · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI KAVALIERATOS, DIONYSIOS · 2016 to 2019
$527k
AHRQ HHS K12 HS022989AHRQ HHS K12HS022989NCATS NIH HHS L30 TR001226NHLBI NIH HHS K01 HL133466
6 · The paper itself

Abstract

backgroundTo date, research and promotion regarding advance care planning (ACP) has targeted those with serious illness or the elderly, thereby ignoring healthy young adults. The purpose of this study was to explore young adults' knowledge, attitudes, and preferences regarding advance care planning (ACP) and medical decision-making. Further, we aimed to understand the potential role of public health to encourage population-based promotion of ACP.

methodsBetween February 2007 and April 2007, we conducted six focus groups comprising 56 young adults ages 18-30. Topics explored included (1) baseline knowledge regarding ACP, (2) preferences for ACP, (3) characteristics of preferred surrogates, and (4) barriers and facilitators to completing ACP specific to age and individuation. We used a qualitative thematic approach to analyze transcripts.

resultsAll participants desired more information regarding ACP. In addition, participants expressed (1) heterogeneous attitudes regarding triggers to perform ACP, (2) the opinion that ACP is a marker of individuation, (3) the belief that prior exposure to illness plays a role in prompting ACP, and (4) an appreciation that ACP is flexible to changes in preferences and circumstances throughout the life-course.

conclusionYoung adults perceive ACP as a worthwhile health behavior and view a lack of information as a major barrier to discussion and adoption. Our data emphasize the need for strategies to increase ACP knowledge, while encouraging population-level, patient-centered, healthcare decision-making.

Indexed as

Advance Care PlanningHealth Knowledge, Attitudes, PracticeUniversitiesAdolescentAdultDecision MakingFemaleFocus GroupsHealth BehaviorHumansLongitudinal StudiesMalePennsylvaniaQualitative ResearchStudentsYoung Adult

Identifiers

PMID25885778
PMCPMC4349677
OpenAlexW2081498310

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.