ArticleBulletin of the World Health Organization2015
A call for global governance of biobanks.
Article in Bulletin of the World Health Organization, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed.
- From Acceptable Profit to Fair Return: Operational Benefit-Sharing Models for Induced Pluripotent Stem Cell Research Using Legacy Samples from Low- and Middle-Income Countries.Research square · 2026Article
- Ethical navigation of biobanking establishment in Ukraine: learning from the experience of developing countries.Journal of medical ethics · 2026Article
- A Significant Prospective on Nanorobotics in Precision Medicine and Therapeutic Interventions.Pharmaceutical nanotechnology · 2025Review
- Article
- Researchers' Perspectives Regarding Ethical Issues of Biobank Research in the Arab Region.Biopreservation and biobanking · 2024Article
- Population diversity and equity in the genomic era: going global to return to the local.Journal of community genetics · 2023Review
- Health care users' acceptance of broad consent for storage of biological materials and associated data for research purposes in Uganda.Wellcome open research · 2022Article
- Commodification of biomaterials and data when funding is contingent to transfer in biobank research.Medicine, health care, and philosophy · 2021Review
- Development and Validation of a Biobank Questionnaire Intended for the Public in the Arab Region.Biopreservation and biobanking · 2021Article
- Genomics governance: advancing justice, fairness and equity through the lens of the African communitarian ethic of Ubuntu.Medicine, health care, and philosophy · 2021Article
- A scoping review of considerations and practices for benefit sharing in biobanking.BMC medical ethics · 2021Article
- Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa.BMC medical ethics · 2021Article
- Considerations for an integrated population health databank in Africa: lessons from global best practices.Wellcome open research · 2021Article
- Ethics preparedness: facilitating ethics review during outbreaks - recommendations from an expert panel.BMC medical ethics · 2019Article
- Role of a regulatory and governance framework in human biological materials and data sharing in National Biobanks: Case studies from Biobank Integrating Platform, Taiwan and the National Biorepository, Uganda.Wellcome open research · 2019Article
- Genomics for All: International Open Science Genomics Projects and Capacity Building in the Developing World.Frontiers in genetics · 2019Article
- Biospecimens and Biobanking in Global Health.Clinics in laboratory medicine · 2018Review
- Legal & ethical compliance when sharing biospecimen.Briefings in functional genomics · 2018Article
- Equity in international health research collaborations in Africa: Perceptions and expectations of African researchers.PloS one · 2017Article
- Clinical Research in Neglected Tropical Diseases: The Challenge of Implementing Good Clinical (Laboratory) Practices.PLoS neglected tropical diseases · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The progress in genomic research has led to increased sampling and storage of biological samples in biobanks. Most biobanks are located in high-income countries, but the landscape is rapidly changing as low- and middle-income countries develop their own. When establishing a biobank in any setting, researchers have to consider a series of ethical, legal and social issues beyond those in traditional medical research. In addition, many countries may have inadequate legislative structures and governance frameworks to protect research participants and communities from unfair distribution of risks and benefits. International collaborations are frequently being created to support the establishment and proper running of biobanks in low- and middle-income countries. However, these collaborations cause cross-border issues – such as benefit sharing and data access. It is thus necessary to define and implement a fair, equitable and feasible biobank governance framework to ensure a fair balance of risks and benefits among all stakeholders.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.