ArticleDementia (London, England)2017
Dementia grief: A theoretical model of a unique grief experience.
Article in Dementia (London, England), 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
49 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Effectiveness of psychosocial interventions for anticipatory grief in informal caregivers for people living with dementia: a systematic review and meta-analysis.The Gerontologist · 2026Pooled it
- A Systematic Review of the Needs of Children and Young People of a Parent Diagnosed With Young-Onset-Dementia: Informing a Nursing Intervention.Journal of advanced nursing · 2026Pooled it
- Distinct trajectories of emotional distress and physical health among informal dementia caregivers surrounding bereavement: a systematic review.BMC psychology · 2026Pooled it
- Using meta-ethnography to understand the care transition experience of people with dementia and their caregivers.Dementia (London, England) · 2022Pooled it
- Interpersonal Predictors of Grief Among Caregivers of Persons With Dementia.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2026Trial
- Loss and Grief in the Context of Dementia Caregiving.Journal of psychosocial nursing and mental health services · 2022Trial
- Walking a tightrope: meaningful encounters in the care for people with dementia and severely challenging behavior.The Gerontologist · 2026Article
- Pre-loss grief among family caregivers: An evolutionary concept analysis.International journal of nursing sciences · 2026Review
- Article
- Current and bereaved caregivers' experiences of participating in the adapted Telehealth Making Sense of Brain Tumour program in the context of high-grade glioma.Neuro-oncology practice · 2026Article
- Stimulated cytokine production, attachment, and emotional well-being in dementia spousal caregivers.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2026Article
- Meaning making during bereavement as part of caregiver speaks, a narrative photo-elicitation intervention for Caregivers of persons living with dementia.Dementia (London, England) · 2026Article
- The Mediating Role of Resilience in the Relationship Between Anticipatory Grief and Quality of Life in Caregivers of People with Dementia: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2025Article
- Caregiver experiences after the death of a person with dementia with Lewy bodies: A mixed-methods analysis.Journal of Alzheimer's disease : JAD · 2025Article
- Heightened risk: Childhood trauma and anticipatory grief exacerbate the impact of loneliness on depressive symptoms and LPS-stimulated cytokines in dementia caregivers.Psychoneuroendocrinology · 2025Article
- Psychometric evaluation of the Farsi version of the Marwit-Meuser caregiver grief inventory-short form among family caregivers of patients with dementia.BMC geriatrics · 2025Article
- Suffering and loss in Lewy body dementia: Applying a palliative care lens to a longitudinal narrative study.Palliative & supportive care · 2025Article
- Article
- Article
- Letter-writing to the deceased among family caregivers of individuals living with dementia: exploring the role of technology-based interventions.Frontiers in medicine · 2025Article
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
Previous literature reveals a high prevalence of grief in dementia caregivers before physical death of the person with dementia that is associated with stress, burden, and depression. To date, theoretical models and therapeutic interventions with grief in caregivers have not adequately considered the grief process, but instead have focused on grief as a symptom that manifests within the process of caregiving. The Dementia Grief Model explicates the unique process of pre-death grief in dementia caregivers. In this paper we introduce the Dementia Grief Model, describe the unique characteristics of dementia grief, and present the psychological states associated with the process of dementia grief. The model explicates an iterative grief process involving three states- separation, liminality, and re-emergence-each with a dynamic mechanism that facilitates or hinders movement through the dementia grief process. Finally, we offer potential applied research questions informed by the model.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.