ArticleAmerican journal of public health2015
Enhancing stewardship of community-engaged research through governance.
Article in American journal of public health, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04251208 (MOms in REcovery), which is not on this map. Cited by 41 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
MOms in REcovery (MORE): Defining Optimal Care for Pregnant Women and Infants
Who cites it
41 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Tools for assessing health research partnership outcomes and impacts: a systematic review.Health research policy and systems · 2023Pooled it
- How are health research partnerships assessed? A systematic review of outcomes, impacts, terminology and the use of theories, models and frameworks.Health research policy and systems · 2022Pooled it
- Implementation effectiveness of health interventions for indigenous communities: a systematic review.Implementation science : IS · 2019Pooled it
- "Coming Correct": Conducting Community Engagement Studios to Adapt Mindfulness-Based Cognitive Therapy for the Chronic Pain-Depression Comorbidity Among Older Black Adults.Journal of clinical psychology in medical settings · 2026Article
- Mapping key issues and useful theory to address remaining ethical, practical and political challenges in participatory research in health.Wellcome open research · 2025Review
- Qualitative genomic research with Indigenous peoples: a scoping review of participatory practice.BMJ global health · 2024Article
- Examining the influence of group diversity on the functioning of community-based participatory research partnerships: A mixed methods study.American journal of community psychology · 2023Review
- Transforming the field: the role of academic health centers in promoting and sustaining equity based community engaged research.Frontiers in public health · 2023Article
- Adaptation and implementation processes of a culture-centred community-based peer-education programme for older Māori.Implementation science communications · 2022Article
- Tribal Deliberations about Precision Medicine Research: Addressing Diversity and Inequity in Democratic Deliberation Design and Evaluation.Journal of empirical research on human research ethics : JERHRE · 2022Article
- Reclaiming Indigenous Health in the US: Moving beyond the Social Determinants of Health.International journal of environmental research and public health · 2022Article
- Exploring theoretical mechanisms of community-engaged research: a multilevel cross-sectional national study of structural and relational practices in community-academic partnerships.International journal for equity in health · 2022Article
- Precision medicine research with American Indian and Alaska Native communities: Results of a deliberative engagement with tribal leaders.Genetics in medicine : official journal of the American College of Medical Genetics · 2022Article
- Adaptations of an RCT during COVID: Case Study in one Rural American Indian Community.Collaborations (Coral Gables, Fla.) · 2022Article
- Extending Research Protections to Tribal Communities.The American journal of bioethics : AJOB · 2021Article
- Best Practices for Conducting Clinical Trials With Indigenous Children in the United States.American journal of public health · 2021Article
- Empowering Equitable Data Use Partnerships and Indigenous Data Sovereignties Amid Pandemic Genomics.Frontiers in public health · 2021Review
- Urban American Indian and Alaska Native Data Sovereignty: Ethical Issues.American Indian and Alaska native mental health research (Online) · 2021Article
- Personal Outcomes in Community-based Participatory Research Partnerships: A Cross-site Mixed Methods Study.American journal of community psychology · 2020Article
- Kaumātua Mana Motuhake Pōi: a study protocol for enhancing wellbeing, social connectedness and cultural identity for Māori elders.BMC geriatrics · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
objectivesWe explored the relationship of community-engaged research final approval type (tribal government, health board, or public health office (TG/HB); agency staff or advisory board; or individual or no community approval) with governance processes, productivity, and perceived outcomes.
methodsWe identified 294 federally funded community-engaged research projects in 2009 from the National Institutes of Health's Research Portfolio Online Reporting Tools, Centers for Disease Control and Prevention's Prevention Research Centers, and Native American Research Centers for Health databases. Two hundred (68.0%) investigators completed a survey about governance processes and productivity measures; 312 partners (77.2% of 404 invited) and 138 investigators (69.0% of 200 invited) completed a survey about perceived outcomes.
resultsProjects with TG/HB approval had increased likelihood of community control of resources (odds ratios [ORs] ≥ 4.80). Projects with other approvals had decreased likelihood of development or revision of institutional review board policies (ORs ≤ 0.37), having written agreements (ORs ≤ 0.17), and agreements about publishing (ORs ≤ 0.28), data use (ORs ≤ 0.17), and publishing approval (ORs ≤ 0.14).
conclusionsCommunity-engaged research projects with TG/HB approval had strong stewardship of project resources and agreements. Governance as stewardship protects community interests; thus, is an ethical imperative for communities, especially native communities, to adopt.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.