ArticleAgeing and society2015
Disruption, control and coping: responses of and to the person with dementia in hospital.
Article in Ageing and society, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Informal carers' perspectives on the delivery of acute hospital care for patients with dementia: a systematic review.BMC geriatrics · 2018Pooled it
- Failure to Re-identify and Manage Known Dementia Associated With Hospital Readmission and LOS: A Retrospective Cohort Study.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- A hospital-based special care unit for dementia decreased hospital readmission rates for behaviour while reducing rates of falls and occupational violence across medical wards.Age and ageing · 2025Article
- Article
- Impact of Hospitalizations on Problematic Medication Use Among Community-Dwelling Persons With Dementia.The journals of gerontology. Series A, Biological sciences and medical sciences · 2024Article
- The Role of Behavioral Management in Enhancing Clinical Care and Efficiency, Minimizing Social Disruption, and Promoting Welfare in Captive Primates.Veterinary sciences · 2024Article
- 'A lot of people think it's just a Mickey Mouse role': Role ambiguity among dementia support workers within secondary care and community hospital settings.Dementia (London, England) · 2024Article
- New horizons for caring for people with dementia in hospital: the DEMENTIA CARE pointers for service change.Age and ageing · 2022Article
- Experience of the healthcare system for caregivers of persons with dementia.Aging and health research · 2022Article
- Factors associated with shorter length of admission among people with dementia in England and Wales: retrospective cohort study.BMJ open · 2021Article
- Discharge Communication of Dementia-Related Neuropsychiatric Symptoms and Care Management Strategies During Hospital to Skilled Nursing Facility Transitions.Journal of geriatric psychiatry and neurology · 2021Article
- Article
- Hospital outcomes of older people with cognitive impairment: An integrative review.International journal of geriatric psychiatry · 2018Review
- Challenges and opportunities in understanding dementia and delirium in the acute hospital.PLoS medicine · 2017Article
- The association between patient engagement and quality of care interactions among acute care patients with dementia.Geriatric nursing (New York, N.Y.)Article
- Understanding factors influencing residential respite service use by carers of people living with dementia using Andersen's behavioural model of health services use: A qualitative study.Aging & mental healthArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
This qualitative study aimed to gain insight into the experience of hospitalisation from the perspectives of the older person with dementia, their family care-giver and other patients sharing the ward (co-patients). Non-participant observation of care on 11 acute hospital wards was supplemented by 39 semi-structured interviews with 35 family care-givers and four co-patients following discharge. Constant comparative analysis produced the core problem facing all those involved: disruption from normal routine meaning that the experience of hospitalisation was disrupted by the presence and behaviour of the person with dementia. Disruption adversely affected the person with dementia, triggering constructive, disengaged, distressed and neutral behaviours. Using Kitwood's model of person-centred care, these behaviours were interpreted as attempts by the person with dementia at gaining a sense of control over the unfamiliar environment and experience. Family care-givers' lives and experiences both inside and outside the hospital were disrupted by the hospitalisation. They too attempted to gain a sense of control over the experience and to give a sense of control to the patient, co-patients and staff. Co-patients experienced disruption from sharing space with the person with dementia and were left feeling vulnerable and sometimes afraid. They too attempted to gain a sense of control over their situation and give some control by helping the person with dementia, the family care-giver and the staff.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.