Evidence map›Paper›PMID 25877832›Full record

ArticleAIDS and behavior2016

A Mixed-Methods Study Supporting a Model of Chinese Parental HIV Disclosure.

Joyce P Yang, Tianyi Xie, Jane M Simoni, Cheng-Shi Shiu, Wei-ti Chen, Hongxin Zhao, Hongzhou Lu

Open access · greenAbstract read
In one paragraph

Article in AIDS and behavior, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed, 1 pooled it
1.9field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed, 1 synthesis or guideline pooled it, 21 citations in OpenAlex.

  1. Pooled it
  2. Concerns of Parental HIV Disclosure in China.Clinical nursing research · 2021
    Trial
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  11. International journal of pediatrics & adolescent medicine · 2018
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 5 institutions in 2 countries.

Joyce P YangDepartment of Psychology, University of Washington, Seattle, WA, USA.
Tianyi XieDepartment of Psychology, Utah State University, Logan, UT, USA.
Jane M SimoniDepartment of Psychology, University of Washington, Seattle, WA, USA.
Cheng-Shi ShiuSchool of Social Work, University of Washington, Seattle, WA, USA.
Wei-ti ChenSchool of Nursing, Yale University, Orange, CT, USA.
Hongxin ZhaoBeijing Ditan Hospital, Capital Medical University, Beijing, People's Republic of China. 13911022130@163.com.
Hongzhou LuShanghai Public Health Clinical Center, Fudan University, Shanghai, People's Republic of China. luhongzhou@fudan.edu.cn.
University of Washington · USBeijing Ditan Hospital · CNShanghai Public Health Clinical Center · CNUtah State University · USYale University · US

Funding

University of Washington/Fred Hutch Center for AIDS ResearchP30AI027757 · NIAID · UNIVERSITY OF WASHINGTON · PI EDWIN ROBERTO ORELLANA · 1988 to 2026
$104.9M
Developing an Antiretroviral Adherence Program in ChinaR34MH074364 · NIMH · UNIVERSITY OF WASHINGTON · PI SIMONI, JANE MARIE · 2005 to 2007
$777k
Mentoring Diverse Scientists in Global HIV Research on Mental Health & AdherenceK24MH093243 · NIMH · UNIVERSITY OF WASHINGTON · PI SIMONI, JANE M. · 2011 to 2014
$590k
Self- and Family-Management Intervention in HIV+ Chinese WomenK23NR014107 · NINR · YALE UNIVERSITY · PI CHEN, WEI-TI · 2013 to 2015
$374k
Developing an Intervention for Disclosure of Parental HIV to Children in ChinaR21HD074141 · NICHD · UNIVERSITY OF WASHINGTON · PI SIMONI, JANE M. · 2012 to 2013
$360k
Reducing Psychological Distress of HIV+ Parents and Their Families in China.F31MH099925 · NIMH · UNIVERSITY OF WASHINGTON · PI YANG, JOYCE P · 2012 to 2015
$149k
NIAID NIH HHS P30 AI027757NIAID NIH HHS P30AI27757NICHD NIH HHS R21 HD074141NIMH NIH HHS F31 MH099925NIMH NIH HHS F31MH099925-01NIMH NIH HHS K24 MH093243NIMH NIH HHS K24MH093243NIMH NIH HHS R34 MH074364NINR NIH HHS K23 NR014107NINR NIH HHS K23NR14107
6 · The paper itself

Abstract

Parents who are HIV-positive confront difficult decisions regarding whether, when, and how to disclose their HIV status to their children. In China, a setting of acute HIV stigma where family harmony is culturally valued, limited research has been conducted on parental disclosure. We aimed to develop a model of parental disclosure that accounts for the cultural context in China based on a mixed-methods study. In our individual, in-depth interviews (N = 24) as well as survey data (N = 84) collected from parents living with HIV in Shanghai and Beijing, we found the primary barriers to disclosure were stigma, fear of exposing the mode by which they acquired HIV, psychologically burdening the child, rejection by the child, and negative social consequences for the family. Parents concurrently cited many motivations for disclosure, such as disease progression, ensuring safety of the child, gaining assistance, and fulfilling their parental responsibility. Most parents had not actively disclosed their HIV status (68 %); many parents reported some form of partial disclosure (e.g., sharing they have a blood disease but not labeling it HIV), unplanned disclosure, or unintentional disclosure to their children by other people. Findings informed the development of a Chinese Parental HIV Disclosure Model, with primary components accounting for distal cultural factors, decision-making (balancing approach and avoid motivations), the disclosure event, and outcomes resulting from the disclosure. This model highlights the cultural context of the Chinese parental disclosure process, and may be useful in guiding future observational research and intervention work.

Indexed as

Parent-Child RelationsSelf DisclosureSocial StigmaTruth DisclosureAdolescentAdultAgedAge FactorsChildChinaFemaleHIV InfectionsHumansInterviews as TopicMaleMiddle AgedChildrenChinaDisclosureHIV/AIDSParents

Identifiers

PMID25877832
PMCPMC5340289
OpenAlexW2085228126

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.