ArticleEuropean journal of pediatrics2015
Subjective need for psychological support (PsySupp) in parents of children and adolescents with disorders of sex development (dsd).
Article in European journal of pediatrics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
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Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it, 91 citations in OpenAlex.
- Clinical practice guidelines for the management of differences of sex development in Japan.Endocrine journal · 2026Guideline
- A Systematic Review of the Health and Healthcare Inequalities for People with Intersex Variance.International journal of environmental research and public health · 2020Pooled it
- Mixed Gonadal Dysgenesis: A Comprehensive Review of Clinical Spectrum, Diagnostic Strategies, and Management Approaches.Clinical endocrinology · 2026Review
- Clinical practice guidelines for the management of differences of sex development in Japan.Clinical pediatric endocrinology : case reports and clinical investigations : official journal of the Japanese Society for Pediatric Endocrinology · 2026Review
- A Comprehensive Child Psychiatry Approach for Managing Patients with Differences of Sexual Development in a Multidisciplinary Setting: An Alternative Follow-up ModelJournal of clinical research in pediatric endocrinology · 2025Article
- Differences of sex development.Nature reviews. Disease primers · 2025Review
- Satisfaction with health care among people with differences of sex development (DSD) in Germany.Endocrine connections · 2025Article
- Structured care after a DSD diagnosis in childhood: a mixed methods evaluation of the Empower-DSD program.Frontiers in pediatrics · 2025Article
- Psychosocial Support for Parents, Infants, Children, and Adolescents with Variations of Sex Characteristics: Results from a Pan-European Survey.Behavioral sciences (Basel, Switzerland) · 2024Article
- Caring for a Child with Congenital Adrenal Hyperplasia Diagnosed by Newborn Screening: Parental Health-Related Quality of Life, Coping Patterns, and Needs.International journal of environmental research and public health · 2023Article
- Diagnosis of DSD in Children-Development of New Tools for a Structured Diagnostic and Information Management Program within the Empower-DSD Study.Journal of clinical medicine · 2022Article
- Intersexuality/Differences of Sex Development through the Discourse of Intersex People, Their Relatives, and Health Experts: A Descriptive Qualitative Study.Healthcare (Basel, Switzerland) · 2022Article
- Defining successful outcomes and preferences for clinical management in differences/disorders of sex development: Protocol overview and a qualitative phenomenological study of stakeholders' perspectives.Journal of pediatric urology · 2022Article
- Psychosocial care and support in the field of intersex/diverse sex development (dsd): counselling experiences, localisation and needed improvements.International journal of impotence research · 2021Article
- Parent experience with volunteers and support groups in a multidisciplinary DSD clinic.Clinical practice in pediatric psychology · 2020Article
- Gender identity: A psychosocial primer for providing care to patients with a disorder/difference of sex development and their families [individualized care for patients with intersex (Disorders/differences of sex development): Part 2].Journal of pediatric urology · 2020Article
- Review
- Psychosocial Screening in Disorders/Differences of Sex Development: Psychometric Evaluation of the Psychosocial Assessment Tool.Hormone research in paediatrics · 2018Article
- Interdisciplinary care in disorders/differences of sex development (DSD): The psychosocial component of the DSD-Translational research network.American journal of medical genetics. Part C, Seminars in medical genetics · 2017Article
- Psychosocial implications of disorders of sex development treatment for parents.Current opinion in urology · 2017Review
Corrections and comments
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Authors and funding
8 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
unlabelledDisorders/diversity of sex development (dsd) is an umbrella term for congenital conditions often diagnosed within childhood. As most parents are unprepared for this situation, psychological support (PsySupp) is recommended. The aim of this study was to analyse the extent to which parents express a need for PsySupp. Three hundred twenty-nine parents of children with dsd were included; 40.4 % of the parents indicated to have a need for PsySupp, only 50 % of this group received it adequately. The diagnoses partial gonadal dysgenesis, partial androgen insensitivity syndrome (pAIS) and disorders of androgen synthesis are associated with a high need for PsySupp in parents (54, 65, and 50 %). Sex assignment surgery neither reduced nor increased the need for PsySupp. Taking a picture, radiography, laparoscopy, gonadal biopsy, gonadectomy and hormonal puberty induction are associated with a high need for PsySupp. There was no association between the need for PsySupp and the parents' perception of the appearance of the genitalia.
conclusionHaving a child with dsd is associated with a high need for PsySupp in parents. In particular, parents of children with XY-dsd with androgen effects other than hypospadias expressed a high need of PsySupp. PsySupp for parents should be an obligatory part of interdisciplinary care to reduce fears and concerns. What is known • In parents, having a child with dsd provokes insecurities and fears. Hence, psychological support is recommended as part of the interdisciplinary care. What is new • This is the first study investigating the subjective need for psychological support in a large sample of parents of children with dsd in Germany. We present data on the subjective need for psychological support of the parents, related diagnoses and factors, which should be considered in psychological counselling.
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