Evidence map›Paper›PMID 25854973›Full record

SynthesisBMJ open2015

Systematic review: unmet supportive care needs in people diagnosed with chronic liver disease.

Patricia C Valery, Elizabeth Powell, Neta Moses, Michael L Volk, Steven M McPhail, Paul J Clark, Jennifer Martin

Open access · goldAbstract readSystematic Review
In one paragraph

Synthesis in BMJ open, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
39citing papers in PubMed, 5 pooled it
3.0field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

39 citing papers in PubMed, 5 syntheses or guidelines pooled it, 82 citations in OpenAlex.

  1. Guideline
  2. The Unmet Needs of Community-Dwelling Stroke Survivors: A Systematic Review of Qualitative Studies.International journal of environmental research and public health · 2021
    Pooled it
  3. Supportive care and unmet needs in patients with melanoma: a mixed-methods systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020
    Pooled it
  4. Pooled it
  5. Unmet care needs in people living with advanced cancer: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2016
    Pooled it
  6. The specialized educational and psychological counseling in inflammatory bowel disease patients - a target or a challenge?The Turkish journal of gastroenterology : the official journal of Turkish Society of Gastroenterology · 2020
    Trial
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Quality of end-of-life care with non-malignant liver disease: Analysis of the VOICES National Survey of Bereaved People.Liver international : official journal of the International Association for the Study of the Liver · 2023
    Article
  14. Social support and risk of mortality in cirrhosis: A cohort study.JHEP reports : innovation in hepatology · 2023
    Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 7 institutions in 2 countries.

Patricia C ValeryMenzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia School of Medicine, University of Queensland, Brisbane, Queensland, Australia.
Elizabeth PowellCentre for Liver Disease Research, School of Medicine, The University of Queensland, Brisbane, Queensland, Australia Department of Gastroenterology and Hepatology, Princess Alexandra Hospital, Brisbane, Queensland, Australia.
Neta MosesSchool of Medicine and Public Health, University of Newcastle, Newcastle, New South Wales, Australia.
Michael L VolkDivision of Gastroenterology and Hepatology, University of Michigan Health System, Ann Arbor, Michigan, USA.
Steven M McPhailInstitute of Health and Biomedical Innovation and School of Public Health & Social Work, Queensland University of Technology, Brisbane, Queensland, Australia Centre for Functioning and Health Research, Metro South Health, Brisbane, Queensland, Australia.
Paul J ClarkSchool of Medicine, University of Queensland, Brisbane, Queensland, Australia Department of Gastroenterology and Hepatology, Princess Alexandra Hospital, Brisbane, Queensland, Australia Cancer Control Group, QIMR Berghofer Medical Research Institute, Brisbane, Queensland, Australia.
Jennifer MartinSchool of Medicine and Public Health, University of Newcastle, Newcastle, New South Wales, Australia Diamantina Institute, University of Queensland, Brisbane, Queensland, Australia.
Menzies School of Health Research · AUMichigan Medicine · USPrincess Alexandra Hospital · AUQIMR Berghofer Medical Research Institute · AUQueensland University of Technology · AUThe University of Queensland · AUUniversity of Newcastle Australia · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivePeople with chronic liver disease, particularly those with decompensated cirrhosis, experience several potentially debilitating complications that can have a significant impact on activities of daily living and quality of life. These impairments combined with the associated complex treatment mean that they are faced with specific and high levels of supportive care needs. We aimed to review reported perspectives, experiences and concerns of people with chronic liver disease worldwide. This information is necessary to guide development of policies around supportive needs screening tools and to enable prioritisation of support services for these patients.

designSystematic searches of PubMed, MEDLINE, CINAHL and PsycINFO from the earliest records until 19 September 2014. Data were extracted using standardised forms. A qualitative, descriptive approach was utilised to analyse and synthesise data.

resultsThe initial search yielded 2598 reports: 26 studies reporting supportive care needs among patients with chronic liver disease were included, but few of them were patient-reported needs, none used a validated liver disease-specific supportive care need assessment instrument, and only three included patients with cirrhosis. Five key domains of supportive care needs were identified: informational or educational (eg, educational material, educational sessions), practical (eg, daily living), physical (eg, controlling pruritus and fatigue), patient care and support (eg, support groups), and psychological (eg, anxiety, sadness).

conclusionsWhile several key domains of supportive care needs were identified, most studies included hepatitis patients. There is a paucity of literature describing the supportive care needs of the chronic liver disease population likely to have the most needs--namely those with cirrhosis. Assessing the supportive care needs of people with chronic liver disease have potential utility in clinical practice for facilitating timely referrals to support services.

Indexed as

Health Services Needs and DemandLiver DiseasesSocial SupportActivities of Daily LivingAftercareChronic DiseaseHumansQuality of LifeSurveys and QuestionnairesEPIDEMIOLOGYHepatology < INTERNAL MEDICINE

Identifiers

PMID25854973
PMCPMC4390721
OpenAlexW2147750215

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.