Evidence map›Paper›PMID 25848410›Full record

ReviewApplied clinical informatics2015

Legal and regulatory considerations associated with use of patient-generated health data from social media and mobile health (mHealth) devices.

C Petersen, P DeMuro

Abstract readReview
In one paragraph

Review in Applied clinical informatics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
32citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

32 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Proceedings of the ACM on human-computer interaction · 2025
    Article
  5. Article
  6. Review
  7. Review
  8. Review
  9. Review
  10. Review
  11. The role of artificial intelligence for the application of integrating electronic health records and patient-generated data in clinical decision support.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2024
    Article
  12. Article
  13. Article
  14. Article
  15. The technical landscape for patient-centered CDS: progress, gaps, and challenges.Journal of the American Medical Informatics Association : JAMIA · 2022
    Article
  16. Article
  17. "They don't always think about that": Translational Needs in the Design of Personal Health Informatics Applications.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2021
    Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

C PetersenMayo Clinic , Rochester, Minnesota, USA.
P DeMuroDepartment of Medical Informatics and Clinical Epidemiology, Oregon Health & Science University , Portland, Oregon, USA ; Schwabe, Williamson & Wyatt , Seattle, Washington, USA.

Funding

TRAINING PROGRAM IN HEALTH INFORMATICST15LM007088 · NLM · OREGON HEALTH & SCIENCE UNIVERSITY · PI WILLIAM R HERSH, Vishnu Mohan · 1992 to 2026
$23.4M
NLM NIH HHS T15 LM007088NLM NIH HHS T15LM007088
6 · The paper itself

Abstract

Patient-generated health data are coming into broader use across the health care spectrum and hold great promise as a means to improve care and health outcomes. At the same time, rapid evolution in the social media and mobile health (mHealth) market has promoted an environment in which creation and transmission of personal health information is easy, quick, and appealing to patients. However, adoption of social media and mHealth by providers is hampered by legal and regulatory concerns with regard to data ownership and data use. This article defines common forms of patient-generated health data (PGHD) and describes how PGHD is used in clinical settings. It explores issues related to protection of personal health information, including that of children and adolescents, data security, and other potential barriers such as physician licensure. It also discusses regulatory and legal considerations providers and patients should consider before using social media and mobile health apps.

Indexed as

Social Control, FormalSocial MediaHealth Information SystemsHumansOwnershipTelemedicinejurisprudencelegislationmobile appsmobile healthpatient outcome assessmentSocial media

Identifiers

PMID25848410
PMCPMC4377557

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.