ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2016
Patient Education vs. Patient Experiences of Self-advocacy: Changing the Discourse to Support Cancer Survivors.
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- Venous Access: National Guideline and Registry Development (VANGUARD): Advancing Patient-Centered Venous Access Care Through the Development of a National Coordinated Registry Network.Journal of medical Internet research · 2023Guideline
- Patients' Experiences in Inviting Healthcare Persons Into Caring Relationships: A Thematic Analysis.Scandinavian journal of caring sciences · 2026Article
- Evaluation of a patient educational brochure to increase knowledge of cervical cancer screening among women living with HIV in La Romana.BMC public health · 2026Article
- Empowering Kuwaiti adults with cancer: oncology nurses' perspectives on home-based self-management.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Influencing factors of self-advocacy in stroke patients from multiple perspectives: a qualitative study.BMC health services research · 2025Article
- Impact and Enablers of Pharmacogenetic-Informed Treatment Decisions-A Longitudinal Mixed-Methods Study Exploring the Patient Perspective.Pharmacy (Basel, Switzerland) · 2025Article
- Review
- Understanding the lived-experience and support-needs of people living with antimicrobial resistance in the UK through interpretative phenomenological analysis.Scientific reports · 2024Article
- Development of a diverse osteoporosis screening tool for older US adults from the health and retirement study.Heliyon · 2024Article
- What are We Asking Patients to Do? A Critical Ethical Review of the Limits of Patient Self-Advocacy in the Oncology Setting.The New bioethics : a multidisciplinary journal of biotechnology and the body · 2023Article
- Tailoring Perinatal Health Communication: Centering the Voices of Mothers at Risk for Maternal Mortality and Morbidity.International journal of environmental research and public health · 2022Article
- Identifying Barriers to Advocacy Among Patients With Lung Cancer: The Role of Stigma-Related Interpersonal Constraint.Oncology nursing forum · 2022Article
- Oncology Nurses' Role in Promoting Patient Self-Advocacy.Clinical journal of oncology nursing · 2022Article
- Evaluating Patient-Defined Priorities for Female Patients with Bladder Cancer.Bladder cancer (Amsterdam, Netherlands) · 2021Article
- "Managing the Wait": Parents' Experiences in Accessing Diagnostic and Treatment Services for Children and Adolescents Diagnosed With Autism Spectrum Disorder.Health services insights · 2020Article
- The role of patient and physician advocacy in reducing wait times for cancer care: a qualitative analysis.CMAJ open · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
A growing emphasis on patient self-advocacy has emerged in the public discourse on cancer survivorship. This discourse shapes patients' conceptualizations about self-advocacy and in turn influences their health care attitudes and behaviors. The purpose of this discourse analysis is to explore the language of self-advocacy by comparing a published self-advocacy guide with the lived experiences of women with ovarian cancer. Data sources include (1) a self-advocacy patient education guide published by the National Coalition for Cancer Survivorship and (2) transcripts of focus groups conducted with ovarian cancer survivors. Discourse analysis techniques were used to take a close look at the language used by both to uncover the meaning each group ascribed to self-advocacy. Challenges and inconsistencies were noted between the patient education guide and transcripts including viewing self-advocacy as a skill set to assert one's needs as opposed to a means by which to preserve a positive attitude and maintain a trusting relationship with health care providers, respectively. Some women saw themselves as self-advocates yet struggled to locate relevant health information and hesitated to upset their relationship with their health care providers. This analysis highlights tensions between the discourses and points to ways in which patient education materials can be adjusted to support cancer survivors in advocating for their needs according to their unique situations and preferences.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.