Evidence map›Paper›PMID 25833335›Full record

Trial reportJournal of genetic counseling2015

Randomized Trial of Telegenetics vs. In-Person Cancer Genetic Counseling: Cost, Patient Satisfaction and Attendance.

Adam H Buchanan, Santanu K Datta, Celette Sugg Skinner, Gail P Hollowell, Henry F Beresford, Thomas Freeland, Benjamin Rogers, John Boling, P Kelly Marcom, Martha B Adams

Registry-linked trialAbstract readRandomized Controlled Trial
In one paragraph

Trial report in Journal of genetic counseling, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04738708 (Telegenetics or In-Person Genetic Counselling), which is not on this map. Cited by 96 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
96citing papers in PubMed, 6 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04738708 recruitingnot on this mapstarted 2021, after this paper: background citation

Telegenetics or In-Person Genetic Counselling: A Comparison of Clinical Outcomes and Cost

TypeobservationalSponsorNational Cancer Centre, SingaporeRan2021 to 2026Enrolled150ConditionsGenetic CounsellingArmsPatients referred to CGS at NCCS for HBOC or Lynch syndrome pre-test genetic counselling.
3 · Its place in the literature

Who cites it

96 citing papers in PubMed, 6 syntheses or guidelines pooled it.

  1. Systematic evidence review and meta-analysis of outcomes associated with cancer genetic counseling.Genetics in medicine : official journal of the American College of Medical Genetics · 2024
    Pooled it
  2. The role of digital health technology in rural cancer care delivery: A systematic review.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2022
    Pooled it
  3. Virtual Care in Patients with Cancer: A Systematic Review.Current oncology (Toronto, Ont.) · 2021
    Pooled it
  4. Videoconferencing to deliver genetics services: a systematic review of telegenetics in light of the COVID-19 pandemic.Genetics in medicine : official journal of the American College of Medical Genetics · 2021
    Pooled it
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  19. Genetic Services in Appalachia Conference Series.American journal of medical genetics. Part A · 2025
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  20. Article

36 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Adam H BuchananGenomic Medicine Institute, Geisinger Health System, M.C. 26-20, 100 N. Academy Ave., Danville, PA, 17822, USA. ahbuchanan@geisinger.edu.
Santanu K DattaDepartment of Medicine, Duke University Medical Center, Durham, NC, USA.
Celette Sugg SkinnerDepartment of Clinical Sciences and Harold C Simmons Cancer Center, University of Texas - Southwestern, Dallas, TX, USA.
Gail P HollowellDepartment of Biology, North Carolina Central University, Durham, NC, USA.
Henry F BeresfordSchool of Nursing, Duke University Medical Center, Durham, NC, USA.
Thomas FreelandOffice of Information Technology, Duke University, Durham, NC, USA.
Benjamin RogersDepartment of Medicine, Medical University of South Carolina, Charleston, SC, USA.
John BolingSchool of Nursing, Duke University Medical Center, Durham, NC, USA.
P Kelly MarcomGenomic Medicine Institute, Geisinger Health System, M.C. 26-20, 100 N. Academy Ave., Danville, PA, 17822, USA.
Martha B AdamsDepartment of Medicine, Duke University Medical Center, Durham, NC, USA.

Funding

Pilot Project for the DTMI CRA ProgramUL1RR024128 · NCRR · DUKE UNIVERSITY · PI CALIFF, ROBERT M · 2006 to 2010
$48.1M
UT Southwestern Center for Translational Medicine (UL1/KL2/TL1)UL1TR001105 · NCATS · UT SOUTHWESTERN MEDICAL CENTER · PI TOTO, ROBERT DANIEL · 2013 to 2017
$24.5M
NCATS NIH HHS UL1 TR001105NCRR NIH HHS 1 UL1 RR024128-01NCRR NIH HHS UL1 RR024128
6 · The paper itself

Abstract

Telegenetics-genetic counseling via live videoconferencing-can improve access to cancer genetic counseling (CGC) in underserved areas, but studies on cancer telegenetics have not applied randomized methodology or assessed cost. We report cost, patient satisfaction and CGC attendance from a randomized trial comparing telegenetics with in-person CGC among individuals referred to CGC in four rural oncology clinics. Participants (n = 162) were randomized to receive CGC at their local oncology clinic in-person or via telegenetics. Cost analyses included telegenetics system; mileage; and personnel costs for genetic counselor, IT specialist, and clinic personnel. CGC attendance was tracked via study database. Patient satisfaction was assessed 1 week post-CGC via telephone survey using validated scales. Total costs were $106 per telegenetics patient and $244 per in-person patient. Patient satisfaction did not differ by group on either satisfaction scale. In-person patients were significantly more likely to attend CGC than telegenetics patients (89 vs. 79 %, p = 0.03), with bivariate analyses showing an association between lesser computer comfort and lower attendance rate (Chi-square = 5.49, p = 0.02). Our randomized trial of telegenetics vs. in-person counseling found that telegenetics cost less than in-person counseling, with high satisfaction among those who attended. This study provides support for future randomized trials comparing multiple service delivery models on longer-term psychosocial and behavioral outcomes.

Indexed as

AgedAmbulatory Care FacilitiesDistance CounselingFemaleGenetic CounselingGenetic TestingHumansMaleMiddle AgedNeoplasmsPatient SatisfactionRural Health ServicesTelemedicineCancer genesCost analysisGenetic counselingPatient satisfactionTelemedicine

Identifiers

PMID25833335
PMCPMC4592683

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.