ArticleEuropean journal of public health2015
Unmet care needs of people with a neurological chronic disease: a cross-sectional study in Italy on Multiple Sclerosis.
Article in European journal of public health, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04979546 (Using Patient-Reported Outcomes To Improve the Care of People With Multiple Sclerosis), which is not on this map. Cited by 29 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Using Patient-Reported Outcomes To Improve the Care of People With Multiple Sclerosis: A Randomized Trial
Who cites it
29 citing papers in PubMed.
- The effect of nurse practitioner (NP-led) care on health-related quality of life in people with multiple sclerosis - a randomized trial.BMC neurology · 2022Trial
- Measuring patient experience of integrated care in multiple sclerosis: development and validation of the Integrated Care Experience Scale (ICES-MS).European journal of public health · 2026Article
- Development of a self-management journey map for people with multiple sclerosis: a qualitative study.BMC neurology · 2026Article
- Supportive care needs as an independent risk factor for survival in advanced liver cancer: a prospective cohort study.Frontiers in oncology · 2026Article
- Exploration of suicidal thinking in people with multiple sclerosis: an interpretative phenomenological analysis.Health psychology and behavioral medicine · 2026Article
- The Illness-Related Distress Scale: development and psychometric evaluation of a new transdiagnostic measure.Psychological medicine · 2025Article
- Identifying definite patterns of unmet needs in patients with multiple sclerosis using unsupervised machine learning.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2024Article
- The Impact of Sample Storage on Blood Methylation: Towards Assessing Myelin Gene Methylation as a Biomarker for Progressive Multiple Sclerosis.International journal of molecular sciences · 2024Article
- Challenges of patients with multiple sclerosis in receiving health care services in Iran.Current journal of neurology · 2023Article
- Evaluation of Clinical Practice Guidelines for Rare Diseases in Japan.JMA journal · 2022Article
- Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability.Journal of multidisciplinary healthcare · 2022Article
- Models of Care in Multiple Sclerosis: A Survey of Canadian Health Providers.Frontiers in neurology · 2022Article
- Article
- Palliative care needs of patients with multiple sclerosis in southeast Iran.BMC palliative care · 2021Article
- Impact of the COVID-19 pandemic on persons with multiple sclerosis: Early findings from a survey on disruptions in care and self-reported outcomes.Journal of health services research & policy · 2021Article
- Factors associated with perceived social support of patients with multiple sclerosis.Current journal of neurology · 2021Article
- Adult-Onset Leukoencephalopathy With Axonal Spheroids and Pigmented Glia: Review of Clinical Manifestations as Foundations for Therapeutic Development.Frontiers in neurology · 2021Review
- A Bio-Psycho-Social Co-created Intervention for Young Adults With Multiple Sclerosis (ESPRIMO): Rationale and Study Protocol for a Feasibility Study.Frontiers in psychology · 2021Article
- Expectations of individuals with neurological conditions from rehabilitation: A mixed-method study of needs.The South African journal of physiotherapy · 2021Article
- Medical crowdfunding in a healthcare system with universal coverage: an exploratory study.BMC public health · 2020Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCommunity-based studies are required to accurately describe the supportive services needed by people with multiple sclerosis (MS).
methodsA total of 1205 people with MS participated in a cross-sectional study evaluating their unmet health and social care needs through a questionnaire collecting information used in the study. It was specifically developed by a multi-disciplinary team.
resultsOverall, 79% of the responders declared at least one health or social care needs. The most prevalent health care need was the psychological support (27.5%), whereas the transport was the social care need more frequent (over 41%) in our sample. The multivariate analysis highlighted that unmet health care needs depended mainly on clinical factors such as disease stage, influenced by disease duration, and disability degree, whereas the social care needs were related to both clinical and socio-demographic factors.
conclusionThese findings suggest that MS needs significantly change over time during the disease development and to find the best way to personalize PwMS management is crucial. Moreover, more public funding directed at improving the health-related quality of life of people with MS is needed. For this reason, we think that these results will provide important information and baseline data on how to build the national service strategies thereby making healthcare planning more efficient.
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