Evidence map›Paper›PMID 25820604›Full record

ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2015

The Development of a Communication Tool to Facilitate the Cancer Trial Recruitment Process and Increase Research Literacy among Underrepresented Populations.

Samantha Torres, Erika E de la Riva, Laura S Tom, Marla L Clayman, Chirisse Taylor, Xinqi Dong, Melissa A Simon

Abstract read
In one paragraph

Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Article
  4. Article
  5. Review
  6. Using a Warm Hand-Off Approach to Enroll African American Caregivers in a Multi-Site Clinical Trial: The Handshake Protocol.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022
    Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Improving Research Literacy in Diverse Minority Populations with a Novel Communication Tool.Journal of cancer education : the official journal of the American Association for Cancer Education · 2019
    Article
  13. Designing for impact: identifying stakeholder-driven interventions to support recovery after major cancer surgery.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018
    Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Samantha TorresDepartment of Obstetrics and Gynecology, Northwestern University Feinberg School of Medicine, 633 N. St Clair, Suite 1800, Chicago, IL, 60611, USA.
Erika E de la RivaDepartment of Obstetrics and Gynecology, Northwestern University Feinberg School of Medicine, 633 N. St Clair, Suite 1800, Chicago, IL, 60611, USA.
Laura S TomInstitute for Public Health and Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
Marla L ClaymanHealth and Social Development Program, American Institutes for Research, Chicago, IL, USA.
Chirisse TaylorLas Vegas Minimally Invasive Surgery, Women's Pelvic Health Center, Las Vegas, NV, USA.
Xinqi DongDepartment of Medicine, Rush University Medical Center, Chicago, IL, USA.
Melissa A SimonDepartment of Obstetrics and Gynecology, Robert H. Lurie Comprehensive Cancer Center and Northwestern University Feinberg School of Medicine, 633 N. St. Clair, Suite 1800, Chicago, IL, 60611, USA. m-simon2@northwestern.edu.

Funding

Tumor Environment and Metastasis (TEAM) Research ProgramP30CA060553 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI Daniela E Matei · 1993 to 2026
$153.9M
Research Education CoreU54CA202997 · NCI · UNIVERSITY OF ILLINOIS AT CHICAGO · PI NAYLOR, KEITH BRIAN, TUSSING-HUMPHREYS, LISA · 2015 to 2024
$13.8M
The Chicago Cancer Health Equity Collaborative (ChicagoCHEC)U54CA202995 · NCI · NORTHEASTERN ILLINOIS UNIVERSITY · PI CIECIERSKI, CHRISTINA · 2015 to 2024
$9.5M
Patient Navigation 2.0: Addressing the Challenge of Scaling Navigation through Checklist-based ImplementationR01CA163830 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI SIMON, MELISSA A. · 2012 to 2024
$5.4M
Chicago Cancer Navigation ProjectU01CA116875 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI ROSEN, STEVEN TERRY · 2005 to 2011
$4.5M
NU: NEIGHBORS: A Social Science Partnership to Reduce Cancer Disparities (2 of*P20CA165592 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI CELLA, DAVID, SIMON, MELISSA A. · 2011 to 2014
$1.0M
NU: NEIGHBORS: A Social Science Partnership to Reduce Cancer Disparities ( 1 ofP20CA165588 · NCI · NORTHEASTERN ILLINOIS UNIVERSITY · PI CELLA, DAVID, GIDEA, MARIAN · 2011 to 2014
$529k
NCI NIH HHS 340CA1168875-04-53NCI NIH HHS 5U01 CA116875-05S4NCI NIH HHS CA165588NCI NIH HHS P20 CA165588NCI NIH HHS P20 CA165592NCI NIH HHS P20CA165592NCI NIH HHS P20CA165592-02S1NCI NIH HHS P20CA165592-02S2NCI NIH HHS P30 CA060553NCI NIH HHS R01 CA163830NCI NIH HHS U01CA116874NCI NIH HHS U01 CA116875NCI NIH HHS U54 CA202995NCI NIH HHS U54 CA202997
6 · The paper itself

Abstract

Despite increasing need to boost the recruitment of underrepresented populations into cancer trials and biobanking research, few tools exist for facilitating dialogue between researchers and potential research participants during the recruitment process. In this paper, we describe the initial processes of a user-centered design cycle to develop a standardized research communication tool prototype for enhancing research literacy among individuals from underrepresented populations considering enrollment in cancer research and biobanking studies. We present qualitative feedback and recommendations on the prototype's design and content from potential end users: five clinical trial recruiters and ten potential research participants recruited from an academic medical center. Participants were given the prototype (a set of laminated cards) and were asked to provide feedback about the tool's content, design elements, and word choices during semi-structured, in-person interviews. Results suggest that the prototype was well received by recruiters and patients alike. They favored the simplicity, lay language, and layout of the cards. They also noted areas for improvement, leading to card refinements that included the following: addressing additional topic areas, clarifying research processes, increasing the number of diverse images, and using alternative word choices. Our process for refining user interfaces and iterating content in early phases of design may inform future efforts to develop tools for use in clinical research or biobanking studies to increase research literacy.

Indexed as

Biomedical ResearchClinical Trials as TopicCommunicationLiteracyMinority GroupsPatient SelectionAdolescentAdultBiological Specimen BanksFemaleFollow-Up StudiesHumansMaleMiddle AgedNeoplasmsYoung AdultBiobankingCancer researchClinical trialsMinority and underrepresented populationsPatient communicationResearch literacy

Identifiers

PMID25820604
PMCPMC4591093

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.