Evidence map›Paper›PMID 25820548›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2016

Dutch-Flemish translation of nine pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)®.

Lotte Haverman, Martha A Grootenhuis, Hein Raat, Marion A J van Rossum, Eline van Dulmen-den Broeder, Karel Hoppenbrouwers, Helena Correia, David Cella, Leo D Roorda, Caroline B Terwee

Abstract read
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.

0numbers the graph read from it
0cells of the map it votes in
28citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

28 citing papers in PubMed.

  1. Trial
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  11. Article
  12. German translation of the PROMISJournal of patient-reported outcomes · 2023
    Article
  13. Article
  14. Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
    Article
  15. Clinicians' perspective on the implemented KLIK PROM portal in clinical practice.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021
    Article
  16. Article
  17. Article
  18. Psychometric properties of the Dutch-Flemish PROMISQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021
    Article
  19. Article
  20. From statistics to clinics: the visual feedback of PROMIS® CATs.Journal of patient-reported outcomes · 2021
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Lotte HavermanPsychosocial Department, Emma Children's Hospital, Academic Medical Center, Meibergdreef 9, 1105 AZ, Amsterdam, The Netherlands. L.Haverman@amc.nl.
Martha A GrootenhuisPsychosocial Department, Emma Children's Hospital, Academic Medical Center, Meibergdreef 9, 1105 AZ, Amsterdam, The Netherlands. m.a.grootenhuis@amc.uva.nl.
Hein RaatDepartment of Public Health, Erasmus MC, University Medical Center, Wytemaweg 80, 3015 CN, Rotterdam, The Netherlands. h.raat@erasmusmc.nl.
Marion A J van RossumDepartment of Pediatric Hematology, Immunology and Infectious Diseases, Emma Children's Hospital, Academic Medical Center, Meibergdreef 9, 1105 AZ, Amsterdam, The Netherlands. m.a.vanrossum@amc.uva.nl.
Eline van Dulmen-den BroederDepartment of Pediatrics, VU University Medical Center, De Boelelaan 1117, 1081 HV, Amsterdam, The Netherlands. E.vanDulmen-denBroeder@vumc.nl.
Karel HoppenbrouwersCentre for Environment and Health, Youth Health Care, KU Leuven, Kapucijnenvoer 35, 3000, Louvain, Belgium. Karel.Hoppenbrouwers@med.kuleuven.be.
Helena CorreiaDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 633 N. Saint Clair St., Chicago, IL, 60611, USA. helena-correia@northwestern.edu.
David CellaCenter on Outcomes Research and Education, Evanston Northwestern Healthcare, 1001 University Pl, Suite 100, Evanston, IL, 60201, USA. d-cella@northwestern.edu.
Leo D RoordaAmsterdam Rehabilitation Research Center | Reade, Overtoom 283, 1054 HW, Amsterdam, The Netherlands. l.roorda@reade.nl.
Caroline B TerweeDepartment of Epidemiology and Biostatistics and the EMGO Institute for Health and Care Research, VU University Medical Center, De Boelelaan 1117, 1081 HV, Amsterdam, The Netherlands. cb.terwee@vumc.nl.

Funding

Tumor Environment and Metastasis (TEAM) Research ProgramP30CA060553 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI Daniela E Matei · 1993 to 2026
$153.9M
The National Person-Centered Assessment Resource (PCAR)U2CCA186878 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI GERSHON, RICHARD · 2014 to 2018
$11.9M
NCI NIH HHS P30 CA060553NCI NIH HHS U2C CA186878
6 · The paper itself

Abstract

purposeThe Patient-Reported Outcomes Measurement Information System (PROMIS(®)) is a new, state-of-the-art assessment system for measuring patient-reported health and well-being of adults and children. It has the potential to be more valid, reliable, and responsive than existing PROMs. The items banks are designed to be self-reported and completed by children aged 8-18 years. The PROMIS items can be administered in short forms or through computerized adaptive testing. This paper describes the translation and cultural adaption of nine PROMIS item banks (151 items) for children in Dutch-Flemish.

methodsThe translation was performed by FACITtrans using standardized PROMIS methodology and approved by the PROMIS Statistical Center. The translation included four forward translations, two back-translations, three independent reviews (at least two Dutch, one Flemish), and pretesting in 24 children from the Netherlands and Flanders.

resultsFor some items, it was necessary to have separate translations for Dutch and Flemish: physical function-mobility (three items), anger (one item), pain interference (two items), and asthma impact (one item). Challenges faced in the translation process included scarcity or overabundance of possible translations, unclear item descriptions, constructs broader/smaller in the target language, difficulties in rank ordering items, differences in unit of measurement, irrelevant items, or differences in performance of activities. By addressing these challenges, acceptable translations were obtained for all items.

conclusionThe Dutch-Flemish PROMIS items are linguistically equivalent to the original USA version. Short forms are now available for use, and entire item banks are ready for cross-cultural validation in the Netherlands and Flanders.

Indexed as

Health StatusPatient Outcome AssessmentSurveys and QuestionnairesTranslationsAdolescentAdultAngerAsthmaChildEthnicityFemaleHumansLanguageNetherlandsPainPediatricsHRQOLMeasurementsPediatric item banksPROMISPROsQuality improvement

Identifiers

PMID25820548
PMCPMC4759227

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.