ArticleAmerican journal of public health2015
From subject to participant: ethics and the evolving role of community in health research.
Article in American journal of public health, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
37 citing papers in PubMed.
- The roadmap for community engagement: co-design and evaluation of a toolkit to strengthen community-academic research partnerships.Journal of public health (Oxford, England) · 2026Article
- Article
- A Qualitative Study of the Ethics of Community Scientists' Role in Environmental Health Research from the Perspective of Community Scientists and Institutional Review Board Staff.Environmental health perspectives · 2025Article
- Field Notes from the Border: Lessons Learned in Conducting Mental Health Research Involving Newly Arrived Latinx Immigrants as Study Participants.Journal of immigrant and minority health · 2025Article
- The role of Occupational Therapy in community development to combat social isolation and loneliness.The British journal of occupational therapy · 2024Article
- Protection of Participants in Community-Engaged Research by Institutional Review Boards: A Call for Action.American journal of public health · 2024Article
- Enhancing Community Engagement in Research: A Tiered Approach.American journal of public health · 2024Article
- Ethical and methodological challenges conducting participative research with transgender and gender-diverse young people: a systematic review.International journal of transgender health · 2024Review
- Democratizing Native Hawaiian and Pacific Islander Data: Examining Community Accessibility of Data for Health and the Social Drivers of Health.American journal of public health · 2024Article
- Engaging participants with research findings: A rights-informed approach.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- RADx-UP Coordination and Data Collection: An Infrastructure for COVID-19 Testing Disparities Research.American journal of public health · 2022Article
- Better governance starts with better words: why responsible human tissue research demands a change of language.BMC medical ethics · 2022Article
- Planning for the Next Pandemic: Ethics and Innovation Today for Improved Clinical Trials Tomorrow.Statistics in biopharmaceutical research · 2022Article
- Ethical issues in participatory arts methods for young people with adverse childhood experiences.Health expectations : an international journal of public participation in health care and health policy · 2021Review
- "It's Time to Represent": shifting the paradigm to improve the quality of inputs into value assessment frameworks.Journal of managed care & specialty pharmacy · 2021Article
- Ethics of HIV cure research: an unfinished agenda.BMC medical ethics · 2021Review
- The Community Lab of Ideas for Health: Community-Based Transdisciplinary Solutions in a Malaria Elimination Trial in The Gambia.Frontiers in public health · 2021Article
- Integrating a Sport-Based Trauma-Sensitive Program in a National Youth-Serving Organization.Child & adolescent social work journal : C & A · 2021Article
- Beyond the Belmont Principles: A Community-Based Approach to Developing an Indigenous Ethics Model and Curriculum for Training Health Researchers Working with American Indian and Alaska Native Communities.American journal of community psychology · 2019Article
- Bladder Health Experiences, Perceptions and Knowledge of Sexual and Gender Minorities.International journal of environmental research and public health · 2019Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
Belmont Report principles focus on the well-being of the research subject, yet community-engaged investigators often eschew the role of subject for that of participant. We conducted semistructured interviews with 29 community and academic investigators working on 10 community-engaged studies. Interviews elicited perspectives on ethical priorities and ethical challenges. Interviewees drew on the Belmont Report to describe 4 key principles of ethical community-engaged research (embodying ethical action, respecting participants, generalizing beneficence, and negotiating justice). However, novel aspects of the participant role were the source of most ethical challenges. We theorize that the shift in ethical focus from subject to participant will pose new ethical dilemmas for community-engaged investigators and for other constituents interested in increasing community involvement in health research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.