Evidence map›Paper›PMID 25755233›Full record

Trial reportPediatrics2015

Parent-reported outcomes of a shared decision-making portal in asthma: a practice-based RCT.

Alexander G Fiks, Stephanie L Mayne, Dean J Karavite, Andrew Suh, Ryan O'Hara, A Russell Localio, Michelle Ross, Robert W Grundmeier

Open access · greenAbstract readMulticenter StudyRandomized Controlled Trial
In one paragraph

Trial report in Pediatrics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 88 papers, 17 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
88citing papers in PubMed, 17 pooled it
33.5field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

88 citing papers in PubMed, 17 syntheses or guidelines pooled it, 164 citations in OpenAlex.

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  3. Decision aids for people facing health treatment or screening decisions.The Cochrane database of systematic reviews · 2024
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  12. Effects of caregiver-involved interventions on the quality of life of children and adolescents with chronic conditions and their caregivers: a systematic review and meta-analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019
    Pooled it
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  16. Shared decision-making for people with asthma.The Cochrane database of systematic reviews · 2017
    Pooled it
  17. Interventions to improve adherence to inhaled steroids for asthma.The Cochrane database of systematic reviews · 2017
    Pooled it
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  20. Patient Portal Use Among Older Adults: What Is Really Happening Nationwide?Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2020
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28 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 1 country.

Alexander G FiksThe Pediatric Research Consortium, Center for Biomedical Informatics, PolicyLab, and Center for Pediatric Clinical Effectiveness, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; and Departments of Pediatrics, and fiks@email.chop.edu.
Stephanie L MaynePolicyLab, and Center for Pediatric Clinical Effectiveness, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; and.
Dean J KaraviteCenter for Biomedical Informatics.
Andrew SuhPolicyLab, and Center for Pediatric Clinical Effectiveness, The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; and.
Ryan O'HaraCenter for Biomedical Informatics.
A Russell LocalioBiostatistics and Epidemiology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania.
Michelle RossBiostatistics and Epidemiology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania.
Robert W GrundmeierThe Pediatric Research Consortium, Center for Biomedical Informatics, Departments of Pediatrics, and.
Children's Hospital of Philadelphia · USUniversity of Pennsylvania · USClinical Research Consortium · US

Funding

Shared Decision Making in ADHDK23HD059919 · NICHD · CHILDREN'S HOSP OF PHILADELPHIA · PI FIKS, ALEXANDER GABRIEL · 2009 to 2013
$631k
National Center for Pediatric Practice Based Research & LearningP30HS021645 · AHRQ · AMERICAN ACADEMY OF PEDIATRICS · PI FIKS, ALEXANDER GABRIEL · 2012 to 2016
$599k
AHRQ HHS 1P30HS021645AHRQ HHS P30 HS021645NICHD NIH HHS K23 HD059919NICHD NIH HHS K23HD059919
6 · The paper itself

Abstract

backgroundElectronic health record (EHR)-linked patient portals are a promising approach to facilitate shared decision-making between families of children with chronic conditions and pediatricians. This study evaluated the feasibility, acceptability, and impact of MyAsthma, an EHR-linked patient portal supporting shared decision-making for pediatric asthma.

methodsWe conducted a 6-month randomized controlled trial of MyAsthma at 3 primary care practices. Families were randomized to MyAsthma, which tracks families' asthma treatment concerns and goals, children's asthma symptoms, medication side effects and adherence, and provides decision support, or to standard care. Outcomes included the feasibility and acceptability of MyAsthma for families, child health care utilization and asthma control, and the number of days of missed school (child) and work (parent). Descriptive statistics and longitudinal regression models assessed differences in outcomes between study arms.

resultsWe enrolled 60 families, 30 in each study arm (mean age 8.3 years); 57% of parents in the intervention group used MyAsthma during at least 5 of the 6 study months. Parents of children with moderate to severe persistent asthma used the portal more than others; 92% were satisfied with MyAsthma. Parents reported that use improved their communication with the office, ability to manage asthma, and awareness of the importance of ongoing attention to treatment. Parents in the intervention group reported that children had a lower frequency of asthma flares and intervention parents missed fewer days of work due to asthma.

conclusionsUse of an EHR-linked asthma portal was feasible and acceptable to families and improved clinically meaningful outcomes.

Indexed as

Decision MakingElectronic Health RecordsParentsProfessional-Family RelationsAbsenteeismAdolescentAnti-Asthmatic AgentsAsthmaDecision Support TechniquesFeasibility StudiesFemaleHospitalizationHumansMaleMedication AdherencePrimary Health CareAnti-Asthmatic Agentsasthmapatient portalshared decision-making

Identifiers

PMID25755233
PMCPMC4379463
OpenAlexW1972617632

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.