Evidence map›Paper›PMID 25735742›Full record

ArticleAmerican journal of Alzheimer's disease and other dementias2015

Caregiving experiences of family members of persons with dementia in south India.

Suzanne M Narayan, Mathew Varghese, Kenneth Hepburn, Marsha Lewis, Isabel Paul, Rozina Bhimani

Abstract read
In one paragraph

Article in American journal of Alzheimer's disease and other dementias, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Article
  2. Participant perspectives on online interventions for diverse caregivers of persons living with dementia.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Article
  3. Dementia caregiving in India: New evidence from a National representative sample.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Article
  4. Article
  5. Article
  6. Care Need, Caregiver Availability, and Care Receipt: Variations Across Countries and Over Time in Three Middle-Income Countries.The journals of gerontology. Series A, Biological sciences and medical sciences · 2024
    Article
  7. The Economic Burden of Dementia in India.AEA papers and proceedings. American Economic Association · 2024
    Article
  8. Article
  9. Article
  10. Review
  11. Article
  12. Predictors of Desire to Institutionalization in Dementia Caregivers From a Developing Country.American journal of Alzheimer's disease and other dementias · 2017
    Article
  13. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Suzanne M NarayanSchool of Nursing, Metropolitan State University, St Paul, MN, USA suzanne.narayan@metrostate.edu.
Mathew VargheseNational Institute of Mental Health and Neurosciences, Bangalore, India.
Kenneth HepburnNell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.
Marsha LewisSchool of Nursing, The University at Buffalo, Buffalo, NY, USA.
Isabel PaulPeople Wellness, Bangalore, India.
Rozina BhimaniHenrietta Schmoll School of Health, St Catherine University, St Paul, MN, USA.

Funding

CARGIVER TRAINING IN SOUTH INDIAR03TW001498 · FIC · UNIVERSITY OF MINNESOTA TWIN CITIES · PI NARAYAN, SUZANNE MARIE · 2001 to 2003
$106k
FIC NIH HHS 7R03TW001498-04FIC NIH HHS R03 TW001498
6 · The paper itself

Abstract

This study reports on the first phase of an investigation aimed at adapting The Savvy Caregiver program, a successful family caregiving curriculum developed in the United States, for application in South India. Thirty family members caring for a person with dementia were interviewed regarding their experiences as caregivers (CGs). Qualitative interviews were conducted with the family member at a geriatric clinic, while other diagnostic procedures were being carried out with the person with dementia. Findings from the study revealed that although family members understood the term CG, none could identify a word for CG in his or her language. There was little understanding of dementia as an illness. Family CGs reported feeling distressed, overwhelmed, and frustrated with caregiving. Caregivers were interested in an educational program, but many had unrealistic expectations for what they wanted to learn. The findings provide directions for adapting The Savvy Caregiver curriculum for Indian family CGs.

Indexed as

Health Knowledge, Attitudes, PracticeAdultAdult ChildrenAgedCaregiversDementiaFemaleHumansIndiaMaleMiddle AgedQualitative ResearchSpousesStress, Psychologicalcaregiverscaregiving experiencedementiafamilyqualitative researchSouth India

Identifiers

PMID25735742
PMCPMC9527707

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.