Evidence map›Paper›PMID 25712202›Full record

ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2016

Cancer-Related Information Seeking Among Cancer Survivors: Trends Over a Decade (2003-2013).

Lila J Finney Rutten, Amenah A Agunwamba, Patrick Wilson, Neetu Chawla, Sana Vieux, Danielle Blanch-Hartigan, Neeraj K Arora, Kelly Blake, Bradford W Hesse

Abstract read
PubMed Publisher
In one paragraph

Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 90 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
90citing papers in PubMed, 5 pooled it
20.1field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

90 citing papers in PubMed, 5 syntheses or guidelines pooled it, 163 citations in OpenAlex.

  1. Pooled it
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  6. Trial
  7. Who Enrolls in an Online Cancer Survivorship Program? Reach of the INSPIRE Randomized Controlled Trial for Hematopoietic Cell Transplantation Survivors.Biology of blood and marrow transplantation : journal of the American Society for Blood and Marrow Transplantation · 2020
    Trial
  8. Trial
  9. Article
  10. What patients would have liked to have known in advance about physical function due to cancer treatment.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  11. Information Seeking Behaviors and Preferences of Cancer Survivors: A Cross-sectional Study in Shanghai, China.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  12. Article
  13. Article
  14. Article
  15. Factors Associated with Information Needs and Information-Seeking Intention Among People with Cancer Experience in Hong Kong.Journal of cancer education : the official journal of the American Association for Cancer Education · 2025
    Article
  16. Article
  17. Nutritional information needs and search behaviors in argentine oncology patientsRevista de la Facultad de Ciencias Medicas (Cordoba, Argentina) · 2025
    Article
  18. Treatment summaries for head and neck cancer survivors: a pilot study to improving patient recall and survivorship care plans.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  19. Article
  20. Article

30 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 6 institutions in 1 country.

Lila J Finney RuttenRobert D. and Patricia E. Kern Center for the Science of Health Care Delivery, Mayo Clinic, 200 1st Street SW, Rochester, MN, 55905, USA. rutten.lila@mayo.edu.
Amenah A AgunwambaRobert D. and Patricia E. Kern Center for the Science of Health Care Delivery, Mayo Clinic, 200 1st Street SW, Rochester, MN, 55905, USA.
Patrick WilsonRobert D. and Patricia E. Kern Center for the Science of Health Care Delivery, Mayo Clinic, 200 1st Street SW, Rochester, MN, 55905, USA.
Neetu ChawlaDivision of Research, Kaiser Permanente, Oakland, CA, USA.
Sana VieuxResearch Evaluation and Integration, PCORI, Washington, DC, USA.
Danielle Blanch-HartiganDepartment of Natural and Applied Sciences, Bentley University, Waltham, MA, USA.
Neeraj K AroraDivision of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD, USA.
Kelly BlakeDivision of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD, USA.
Bradford W HesseDivision of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD, USA.
National Cancer Institute · USMayo Clinic in Arizona · USBentley University · USIntegra (United States) · USKaiser Permanente · USWinnMed · US

Funding

Research ProjectU54CA153499 · NCI · UNIVERSITY OF CALIFORNIA AT DAVIS · PI CHEN, MOON SHAO-CHUANG, CHOW, EDWARD A. · 2010 to 2015
$6.7M
NCI NIH HHS U54 CA153499
6 · The paper itself

Abstract

The demonstrated benefits of information seeking for cancer patients, coupled with increases in information availability, underscore the importance of monitoring patient information seeking experiences over time. We compared information seeking among cancer survivors to those with a family history of cancer and those with no history of cancer. We identified characteristics associated with greater information seeking among cancer survivors, key sources of cancer-related information, and changes in information source use over time. Data from five iterations of the Health Information National Trends Survey (HINTS) spanning 2003 to 2013 were merged and analyzed. Frequencies, cross-tabulations, multivariate logistic regression, and multinomial regression analyses were conducted. All data were weighted to provide representative estimates of the adult US population. Cancer information seeking was reported most frequently by cancer survivors (69.8 %). The percentage of cancer survivors who reported information seeking increased from 66.8 % in 2003 to 80.8 % in 2013. Cancer information seeking was independently associated with age, education, and income; seeking was less likely among older adults, those with less education, and those with lower incomes. Compared to respondents in 2003, those in 2005 (odds ratio (OR) = 0.40, 95 % confidence interval (CI) = 0.24-0.65) and 2008 (OR = .43, 95 % CI = 0.26-0.70) were about half as likely to use the Internet as the first source of cancer information compared to a healthcare provider. Despite overall increases in cancer information seeking and access to health information from a variety of sources, healthcare providers remain a key source of health information for cancer survivors.

Indexed as

Information Seeking BehaviorPatient Education as TopicAdolescentAdultAgedFemaleFollow-Up StudiesHumansInternetMaleMiddle AgedNeoplasmsPatient Acceptance of Health CareSurvivorsTime FactorsYoung AdultCancer communicationCancer informationCancer survivorsHealth informationInformation seeking

Identifiers

PMID25712202
OpenAlexW1975489758

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.