ArticleInternational journal of environmental research and public health2015
Exploring the care relationship between grandparents/older carers and children infected with HIV in south-western Uganda: implications for care for both the children and their older carers.
Article in International journal of environmental research and public health, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 3 of them syntheses that pooled it.
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The trial behind it
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Who cites it
18 citing papers in PubMed, 3 syntheses or guidelines pooled it, 44 citations in OpenAlex.
- Health-related needs reported by adolescents living with HIV and receiving antiretroviral therapy in sub-Saharan Africa: a systematic literature review.Journal of the International AIDS Society · 2022Pooled it
- Aging and HIV-Related Caregiving in Sub-Saharan Africa: A Social Ecological Approach.The Gerontologist · 2019Pooled it
- Challenges and support for quality of life of youths living with HIV/AIDS in schools and larger community in East Africa: a systematic review.Systematic reviews · 2019Pooled it
- Stigma and discrimination against adolescents living with perinatal HIV in Thailand: caregivers' perceptions.Frontiers in public health · 2025Article
- Advancing Adolescent and Young Adult HIV Prevention and Care and Treatment Through Use of Multi-level Theories and Frameworks: A Scoping Review and Adapted HIV Ecological Framework.AIDS and behavior · 2024Article
- "Health Outcomes of Grandparents Caring for Double Orphans in South Africa": What Are the Determinants?International journal of environmental research and public health · 2023Article
- Parenting in Adversity: Effects of Older Caregivers, Biological Carers and Troubled Carers on Child Outcomes in High HIV-Affected Communities.Journal of cross-cultural gerontology · 2023Article
- A Multilevel Integrated Intervention to Reduce the Impact of HIV Stigma on HIV Treatment Outcomes Among Adolescents Living With HIV in Uganda: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2022Article
- A qualitative investigation of facilitators and barriers to DREAMS uptake among adolescents with grandparent caregivers in rural KwaZulu-Natal, South Africa.PLOS global public health · 2022Article
- Article
- Understanding older peoples' chronic disease self-management practices and challenges in the context of grandchildren caregiving: A qualitative study in rural KwaZulu-Natal, South Africa.PLOS global public health · 2022Article
- Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study.AIDS research and treatment · 2021Article
- Perceived Caregiver Stress, Coping, and Quality of Life of Older Ugandan Grandparent-Caregivers.Journal of cross-cultural gerontology · 2020Article
- Experiences and effects of HIV-related stigma among youth living with HIV/AIDS in Western Uganda: A photovoice study.PloS one · 2020Article
- A reflection on ethical and methodological challenges of using separate interviews with adolescent-older carer dyads in rural South Africa.BMC medical ethics · 2019Article
- Loss as Experienced by Ugandan Grandparent-Caregivers of Children Affected by HIV/AIDS.Journal of loss & trauma · 2018Article
- "Helping my neighbour is like giving a loan…" -the role of social relations in chronic illness in rural Uganda.BMC health services research · 2017Article
- The role of social relationship in HIV healing and its implications in HIV cure in China.Health psychology and behavioral medicineArticle
Corrections and comments
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Authors and funding
4 authors at 3 institutions in 2 countries.
Funding
Abstract
The care of children orphaned by HIV/AIDS in sub-Saharan Africa is often undertaken by grandparents, yet little is known about the care relationship between grandparent and grandchild. Our aim was to examine this relationship to understand the needs and responsibilities of both the HIV positive child and older carer and the nature of the relationship, and to assess the implications for care for the children and the older carers. A qualitative study was conducted with 40 purposively sampled children (13-17 years) and their older carers (50 years and above). Participants were recruited from two clinics in south-western Uganda. Up to three semi-structured interviews were held with each participant. Data were analysed using a thematic framework approach. We found that the care relationship was mostly reciprocal: HIV positive children depended on carers for basic and health needs and carers counted on the children for performing tedious household tasks. The relationship was also characterised by challenges, sometimes causing tension between child and carer. We conclude that: (1) interventions targeting HIV positive children need to also address the needs of older carers, and (2) carers and children would benefit from psychosocial support and social protection.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.