ArticleJournal of palliative medicine2015
Conversations about End of Life: Perspectives of Nursing Home Residents, Family, and Staff.
Article in Journal of palliative medicine, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
33 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Timing of Goals of Care Discussions in Nursing Homes: A Systematic Review.Journal of the American Medical Directors Association · 2023Pooled it
- Me & My Wishes: Concordance of End-of-Life Preferences between Residents with Dementia, Family, and Staff.Journal of palliative medicine · 2022Trial
- Advanced cancer patients' reported wishes at the end of life: a randomized controlled trial.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2016Trial
- Death and the Oldest Old: Attitudes and Preferences for End-of-Life Care--Qualitative Research within a Population-Based Cohort Study.PloS one · 2016Trial
- Nursing home staff perspectives on adoption of an innovation in goals of care communication.Geriatric nursing (New York, N.Y.)Trial
- Family Caregiver Perspectives on Advance Care Planning Discussions for Residents With Dementia Led by Trained Nursing Home Staff: Insights From the APPROACHES Project.Journal of the American Medical Directors Association · 2026Article
- Quality of Dying Among Institutionalised Nursing Home Residents From the Caregivers' Perspective: A Mixed-Methods Study.Journal of advanced nursing · 2026Article
- When and how is age mentioned? The role of age references in narratives of adults aged 65 and over.The Gerontologist · 2025Article
- Navigating preferences for a trouble-free transition: a grounded theory study among older residents in nursing homes.BMC public health · 2025Article
- Proactive end-of-life conversations in residential care homes: a qualitative interview study exploring residents' and family members' experiences.BMC geriatrics · 2025Article
- Article
- Perspectives of Nursing Home Staff in Advance Care Planning Conversations: Experiences from the APPROACHES Project.Journal of the American Medical Directors Association · 2024Article
- Resident and Caregiver Dyads Talk About Death and Dying in Assisted Living: A Typology of Communication Behaviors.The American journal of hospice & palliative care · 2024Article
- Article
- Role of patients' family members in end-of-life communication: an integrative review.BMJ open · 2023Review
- Nutrition and Non-Nutrition-Related Challenges Predict Time to Death in Long-Term Care Residents: A Retrospective Chart Review.Journal of multidisciplinary healthcare · 2023Article
- The design and conduct of a pragmatic cluster randomized trial of an advance care planning program for nursing home residents with dementia.Clinical trials (London, England) · 2022Article
- "My life became more meaningful": confronting one's own end of life and its effects on well-being-a qualitative study.BMC palliative care · 2022Article
- Quality of life among frail older persons (65+ years) in nursing homes: A cross-sectional study.Nursing open · 2021Article
- Do Life-sustaining Treatment Orders Match Patient and Surrogate Preferences? The Role of POLST.Journal of general internal medicine · 2021Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
backgroundCare in nursing homes (NHs) often overlooks individual values and preferences. Residents' voices are critical to discussions about preferences, yet there remains limited research on conversations about the end of life (EOL) from the perspective of older adults who reside in NHs.
objectiveThe aim of this study was to describe the communication, content and process, related to EOL conversations among residents, family, and staff.
methodsWe used semistructured interviews in this qualitative, descriptive study to describe conversations about EOL preferences. We examined participants' conversation, when it occurred, and what was discussed. We queried about barriers to and facilitators in discussing EOL care in the NH setting. We interviewed residents (n=16), family (n=12), and interdisciplinary staff (n=10) from four NHs.
resultsThe overarching theme—missed conversations—describes EOL-related communication. Residents, families, and staff rarely talked about EOL care preferences, nor did they pass along information about preferences or initiate conversations about EOL care with each other. Three categories explained missed conversations: inquiry ("No one asked"); assumptions (presence of an advance directive [AD], "They know me"); and conveying (lack of conveying information or wishes). Existing barriers and lacking facilitators resulted in missed opportunities to hold conversations about EOL preferences.
conclusionsNot all residents wanted to have conversations, but many wanted to be asked about their preferences. Missed conversations may adversely affect the quality of EOL care. Conversations with residents can be initiated by asking residents who they would like involved in the conversation and drawing upon the experience of others.
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Registered trials
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