ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2015
The patients' active role in managing a personal electronic health record: a qualitative analysis.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Using an Integrated Framework to Investigate the Facilitators and Barriers of Health Information Technology Implementation in Noncommunicable Disease Management: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Effects of a Personal Health Record in Maternity Care: A Stepped-Wedge Trial.International journal of environmental research and public health · 2021Trial
- Assessing patients' needs in the follow-up after treatment for colorectal cancer-a mixed-method study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Mobile Access to Medical Records in Heart Transplantation Aftercare: Mixed-Methods Study Assessing Usability, Feasibility and Effects of a Mobile Application.Life (Basel, Switzerland) · 2022Article
- The patient as a prosumer of healthcare: insights from a bibliometric-interpretive review.Journal of health organization and management · 2022Article
- Beyond Known Barriers-Assessing Physician Perspectives and Attitudes Toward Introducing Open Health Records in Germany: Qualitative Study.Journal of participatory medicine · 2020Article
- Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany.BMC medical informatics and decision making · 2020Article
- An Electronic Medication Module to Improve Health Literacy in Patients With Type 2 Diabetes Mellitus: Pilot Randomized Controlled Trial.JMIR formative research · 2020Article
- Digitalizing Health Services by Implementing a Personal Electronic Health Record in Germany: Qualitative Analysis of Fundamental Prerequisites From the Perspective of Selected Experts.Journal of medical Internet research · 2020Article
- Patients' perception of communication at the interface between primary and secondary care: a cross-sectional survey in 34 countries.BMC health services research · 2019Article
- Developing a patient portal for haematology patients requires involvement of all stakeholders and a customised design, tailored to the individual needs.BMC medical informatics and decision making · 2019Article
- Long-term experience with setup and implementation of an IHE-based image management and distribution system in intersectoral clinical routine.International journal of computer assisted radiology and surgery · 2018Article
- Utilizing a Prototype Patient-Controlled Electronic Health Record in Germany: Qualitative Analysis of User-Reported Perceptions and Perspectives.JMIR formative research · 2018Article
- Making it work for me: beliefs about making a personal health record relevant and useable.BMC health services research · 2018Article
- Consumer Adoption of Future MyData-Based Preventive eHealth Services: An Acceptance Model and Survey Study.Journal of medical Internet research · 2017Article
- Importance-Performance Analysis of Personal Health Records in Taiwan: A Web-Based Survey.Journal of medical Internet research · 2017Article
- A Personal Electronic Health Record: Study Protocol of a Feasibility Study on Implementation in a Real-World Health Care Setting.JMIR research protocols · 2017Article
- Complexity of care and strategies of self-management in patients with colorectal cancer.Patient preference and adherence · 2017Article
- Strengthening Interprofessional Requirements Engineering Through Action Sheets: A Pilot Study.JMIR human factors · 2016Article
- Electronic Health Records: Then, Now, and in the Future.Yearbook of medical informatics · 2016Review
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe complexity of illness and cross-sectoral health care pose challenges for patients with colorectal cancer and their families. Within a patient-centered care paradigm, it is vital to give patients the opportunity to play an active role. Prospective users' attitudes regarding the patients' role in the context of a patient-controlled electronic health record (PEPA) were explored.
methodsA qualitative study across regional health care settings and health professions was conducted. Overall, 10 focus groups were performed collecting views of 3 user groups: patients with colorectal cancer (n = 12) and representatives from patient support groups (n = 2), physicians (n = 17), and other health care professionals (HCPs) (n = 16). Data were audio- and videotaped, transcribed verbatim and thematically analyzed using qualitative content analysis.
resultsThe patients' responsibility as a gatekeeper and access manager was at the center of the focus group discussions, although HCPs addressed aspects that would limit patients taking an active role (e.g., illness related issues). Despite expressed concerns, PEPAs possibility to enhance personal responsibility was seen in all user groups.
conclusionsGiving patients an active role in managing a personal electronic health record is an innovative patient-centered approach, although existing restraints have to be recognized. To enhance user adoption and advance PEPAs potential, key user needs have to be addressed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.