ArticleBMC medical informatics and decision making2014
The design of a low literacy decision aid about rheumatoid arthritis medications developed in three languages for use during the clinical encounter.
Article in BMC medical informatics and decision making, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it, 46 citations in OpenAlex.
- Co-designing interventions for patients with inflammatory arthritis: a systematic review.Systematic reviews · 2026Pooled it
- Barriers to, Facilitators of, and Interventions to Support Treat-to-Target Implementation in Rheumatoid Arthritis: A Systematic Review.Arthritis care & research · 2024Pooled it
- Use of Low-Literacy Decision Aid to Enhance Knowledge and Reduce Decisional Conflict Among a Diverse Population of Adults With Rheumatoid Arthritis: Results of a Pilot Study.Arthritis care & research · 2016Trial
- The Effect of Informational Podcasts on Shared Decision-Making, Anxiety, and Patient Satisfaction in Hospital Visits: Intervention Study.Journal of medical Internet research · 2026Article
- Development of a Web-Based Multimedia Patient Decision Aid for Rheumatoid Arthritis: A User-Centered Design.Healthcare (Basel, Switzerland) · 2026Article
- Shared Decision-Making for Children with Medical Complexity and Their Caregivers in the Perioperative Time.Pediatric clinics of North America · 2026Review
- Development of a Decision Aid to Support Shared Decision-Making on Cannabis Use for Arthritis: Protocol for a Multiphase Study.JMIR research protocols · 2026Article
- The impact of shared decision-making on quality of life in systemic lupus erythematosus practice: findings from the TRUMPFrontiers in immunology · 2026Observational
- Interventions to optimize medication management in patients with language and health literacy barriers: A scoping review.Research in social & administrative pharmacy : RSAP · 2026Article
- Risk factors of decisional conflict among people living with chronic pain identified through a pan-Canadian survey.Scientific reports · 2025Article
- Defining the strategies to advance health-literacy-friendly patient decision aids based on the ICA-NRM approach.BMC health services research · 2025Article
- Article
- The role of low health literacy in shared treatment decision-making in patients with kidney failure.Clinical kidney journal · 2023Review
- Clarifying misbeliefs about hydroxychloroquine (HCQ): developing the HCQ benefits versus harm decision aid (HCQ-SAFE) per low health literacy standards.Lupus science & medicine · 2023Article
- Patient and healthcare team recommended medication adherence strategies for hydroxychloroquine: results of a qualitative study informing intervention development.Lupus science & medicine · 2022Article
- Adaptation of a Shared Decision-Making Tool for Early Rheumatoid Arthritis Treatment Decisions with Indigenous Patients.The patient · 2022Article
- Systematic Development of Patient Decision Aids: An Update from the IPDAS Collaboration.Medical decision making : an international journal of the Society for Medical Decision Making · 2021Article
- Health Literacy and Shared Decision-making: Exploring the Relationship to Enable Meaningful Patient Engagement in Healthcare.Journal of general internal medicine · 2021Article
- Impact of Limited Health Literacy on Patient-Reported Outcomes in Systemic Lupus Erythematosus.Arthritis care & research · 2021Article
- Five Golden Rings to Measure Patient-Centered Care in Rheumatology.Arthritis care & research · 2020Review
Corrections and comments
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Authors and funding
11 authors at 4 institutions in 1 country.
Funding
Abstract
backgroundShared decision-making in rheumatoid arthritis (RA) care is a priority among policy makers, clinicians and patients both nationally and internationally. Demands on patients to have basic knowledge of RA, treatment options, and details of risk and benefit when making medication decisions with clinicians can be overwhelming, especially for those with limited literacy or limited English language proficiency. The objective of this study is to describe the development of a medication choice decision aid for patients with rheumatoid arthritis (RA) in three languages using low literacy principles.
methodsBased on the development of a diabetes decision aid, the RA decision aid (RA Choice) was developed through a collaborative process involving patients, clinicians, designers, decision-aid and health literacy experts. A combination of evidence synthesis and direct observation of clinician-patient interactions generated content and guided an iterative process of prototype development.
resultsThree iterations of RA Choice were developed and field-tested before completion. The final tool organized data using icons and plain language for 12 RA medications across 5 issues: frequency of administration, time to onset, cost, side effects, and special considerations. The tool successfully created a conversation between clinician and patient, and garnered high acceptability from clinicians.
conclusionsThe process of collaboratively developing an RA decision aid designed to promote shared decision making resulted in a graphically-enhanced, low literacy tool. The use of RA Choice in the clinical encounter has the potential to enhance communication for RA patients, including those with limited health literacy and limited English language proficiency.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.