ArticleJMIR research protocols2015
Engaging community stakeholders to evaluate the design, usability, and acceptability of a chronic obstructive pulmonary disease social media resource center.
Article in JMIR research protocols, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Towards Usable E-Health. A Systematic Review of Usability Questionnaires.Applied clinical informatics · 2017Pooled it
- Towards co-design of rehabilitation technologies: a collaborative approach to prioritize usability issues.Frontiers in rehabilitation sciences · 2024Article
- Barriers and facilitators of electronic patient portal uptake for asthma management.The Journal of asthma : official journal of the Association for the Care of Asthma · 2023Article
- #CRCFREE: Using Social Media to Reduce Colorectal Cancer Risk in Rural Adults.American journal of health behavior · 2020Article
- Facebook Groups on Chronic Obstructive Pulmonary Disease: Social Media Content Analysis.International journal of environmental research and public health · 2019Article
- Web-based Health Information Seeking and eHealth Literacy among Patients Living with Chronic Obstructive Pulmonary Disease (COPD).Health communication · 2018Article
- eHealth Literacy and Health Behaviors Affecting Modern College Students: A Pilot Study of Issues Identified by the American College Health Association.Journal of medical Internet research · 2017Article
- Living with asthma and chronic obstructive airways disease: Using technology to support self-management - An overview.Chronic respiratory disease · 2017Review
- Speaking Up: How Patient and Physician Voices Shaped a Trial to Improve Goals-of-Care Discussions.The patient · 2017Article
- Rotterdam Prostate Cancer Risk Calculator: Development and Usability Testing of the Mobile Phone App.JMIR cancer · 2017Article
- Evaluating Comparative Effectiveness Research Priorities for Care Coordination in Chronic Obstructive Pulmonary Disease: A Community-Based eDelphi Study.JMIR research protocols · 2015Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
backgroundPatients with chronic obstructive pulmonary disease (COPD) often report inadequate access to comprehensive patient education resources.
objectiveThe purpose of this study was to incorporate community-engagement principles within a mixed-method research design to evaluate the usability and acceptability of a self-tailored social media resource center for medically underserved patients with COPD.
methodsA multiphase sequential design (qual → QUANT → quant + QUAL) was incorporated into the current study, whereby a small-scale qualitative (qual) study informed the design of a social media website prototype that was tested with patients during a computer-based usability study (QUANT). To identify usability violations and determine whether or not patients found the website prototype acceptable for use, each patient was asked to complete an 18-item website usability and acceptability questionnaire, as well as a retrospective, in-depth, semistructured interview (quant + QUAL).
resultsThe majority of medically underserved patients with COPD (n=8, mean 56 years, SD 7) found the social media website prototype to be easy to navigate and relevant to their self-management information needs. Mean responses on the 18-item website usability and acceptability questionnaire were very high on a scale of 1 (strongly disagree) to 5 (strongly agree) (mean 4.72, SD 0.33). However, the majority of patients identified several usability violations related to the prototype's information design, interactive capabilities, and navigational structure. Specifically, 6 out of 8 (75%) patients struggled to create a log-in account to access the prototype, and 7 out of 8 patients (88%) experienced difficulty posting and replying to comments on an interactive discussion forum.
conclusionsPatient perceptions of most social media website prototype features (eg, clickable picture-based screenshots of videos, comment tools) were largely positive. Mixed-method stakeholder feedback was used to make design recommendations, categorize usability violations, and prioritize potential solutions for improving the usability of a social media resource center for COPD patient education.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.