ArticleJMIR research protocols2015
Development of MijnAVL, an Interactive Portal to Empower Breast and Lung Cancer Survivors: An Iterative, Multi-Stakeholder Approach.
Article in JMIR research protocols, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
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Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Health information technology to support cancer survivorship care planning: A systematic review.Journal of the American Medical Informatics Association : JAMIA · 2021Pooled it
- The Effectiveness of Information Technology-Supported Shared Care for Patients With Chronic Disease: A Systematic Review.Journal of medical Internet research · 2017Pooled it
- From registration to insight: how STRONG AYA transforms registry data to enhance decision-support tools for adolescent and young adult oncology.ESMO real world data and digital oncology · 2026Article
- User-Centered Design for Digital Patient-Navigation Tools in Oncology: Scoping Review.JMIR human factors · 2026Article
- eHealth Interventions for Dutch Cancer Care: Systematic Review Using the Triple Aim Lens.JMIR cancer · 2022Review
- Development and Evaluation of the Usefulness, Usability, and Feasibility of iNNOV Breast Cancer: Mixed Methods Study.JMIR cancer · 2022Article
- Article
- Determinants of adherence to physical cancer rehabilitation guidelines among cancer patients and cancer centers: a cross-sectional observational study.Journal of cancer survivorship : research and practice · 2021Observational
- Participatory Methods to Engage Health Service Users in the Development of Electronic Health Resources: Systematic Review.Journal of participatory medicine · 2019Review
- Article
- Development of an eHealth System to Capture and Analyze Patient Sensor and Self-Report Data: Mixed-Methods Assessment of Potential Applications to Improve Cancer Care Delivery.JMIR medical informatics · 2018Article
- Barriers and Facilitators Affecting Patient Portal Implementation from an Organizational Perspective: Qualitative Study.Journal of medical Internet research · 2018Article
- A Review of Web Portal Use by Oncology Patients.Journal of cancer treatment & diagnosis · 2018Article
- Ambulant monitoring and web-accessible home-based exercise program during outpatient follow-up for resected lung cancer survivors: actual use and feasibility in clinical practice.Journal of cancer survivorship : research and practice · 2017Article
- "Am I normal?" The Wishes of Patients With Lymphoma to Compare Their Patient-Reported Outcomes With Those of Their Peers.Journal of medical Internet research · 2017Article
- Supporting Lung Cancer Patients With an Interactive Patient Portal: Feasibility Study.JMIR cancer · 2017Article
- Achieving value in mobile health applications for cancer survivors.Journal of cancer survivorship : research and practice · 2017Article
- eHealth for Breast Cancer Survivors: Use, Feasibility and Impact of an Interactive Portal.JMIR cancer · 2016Article
- Co-creation of an ICT-supported cancer rehabilitation application for resected lung cancer survivors: design and evaluation.BMC health services research · 2016Article
- Study protocol: an evaluation of the effectiveness, experiences and costs of a patient-directed strategy compared with a multi-faceted strategy to implement physical cancer rehabilitation programmes for cancer survivors in a European healthcare system; a controlled before and after study.Implementation science : IS · 2015Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundMijnAVL (MyAVL) is an interactive portal being developed to empower cancer survivors. Literature review and focus groups yielded the selection of features such as access to the electronic medical record (EMR), patient reported outcomes (PROs) and related feedback, and a physical activity support program.
objectiveOur aim was to present a final design of MijnAVL based on (1) health professionals' evaluation of proposed features, (2) cancer survivors' evaluation of a first draft, and (3) cancer survivors' evaluation of a functional online prototype.
methodsProfessionals from various disciplines gave input to the content of and procedures related to MijnAVL. Subsequently, 16 cancer survivors participated in an interview to evaluate content and graphic design of a first draft (shown with screenshots). Finally, 7 survivors participated in a usability test with a fully functional prototype. They performed predefined tasks (eg, logging in, finding a test result, completing a questionnaire) while thinking aloud. Descriptive statistics and simple content analysis were used to analyze the data of both the interviews and the usability tests.
resultsProfessionals supported access to the EMR (eg, histology reports, lab results, and their letters to general practitioners). They also informed the development of PROs and the physical activity support program. Based on the first draft, survivors selected the preferred graphic design, approved the features and provided suggestions for the content (eg, explanation of medical jargon, more concise texts, notification by emails). Usability tests revealed that it was relatively easy to navigate the website and use the different features. Recommendations included, among others, a frequently asked questions section and the use of hyperlinks between different parts of the website.
conclusionsThe development of MijnAVL, an interactive portal to empower breast and lung cancer survivors, was performed iteratively and involved multiple groups of end-users. This approach resulted in a usable and understandable final version. Its effectiveness should be determined in further research.
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