Evidence map›Paper›PMID 25581047›Full record

ArticleClinical and translational science2015

EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California.

Sarah B Garrett, Barbara A Koenig, Arleen Brown, Jen R Hult, Elizabeth A Boyd, Sarah Dry, Daniel Dohan, in collaboration with UC BRAID

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Clinical and translational science, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Structural Racism in the COVID-19 Pandemic: Moving Forward.The American journal of bioethics : AJOB · 2021
    Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Returning Results in Biobank Research: Global Trends and Solutions.Genetic testing and molecular biomarkers · 2017
    Review
  11. Article
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Sarah B GarrettPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.
Barbara A KoenigDepartments of Social and Behavioral Sciences and Anthropology, History, and Social Medicine, University of California, San Francisco, California, USA.
Arleen BrownDivision of General Internal Medicine and Health Services Research, David Geffen School of Medicine, University of California, Los Angeles, California, USA.
Jen R HultPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.
Elizabeth A BoydDepartment of Medicine and Office of Research and Economic Development, University of California, Riverside, California, USA.
Sarah DryDepartment of Pathology and Laboratory Medicine, David Geffen School of Medicine, University of California, Los Angeles, California, USA.
Daniel DohanPhilip R. Lee Institute for Health Policy Studies, University of California, San Francisco, California, USA.
in collaboration with UC BRAID

Funding

Engaging University of California Stakeholders for Biorespository ResearchUL1TR000004 · NCATS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI GRANDIS, JENNIFER RUBIN · 2012 to 2015
$78.0M
UCLA Clinical and Translational Science InstituteUL1TR000124 · NCATS · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI DUBINETT, STEVEN M. · 2012 to 2015
$57.0M
Center for Transdisciplinary ELSI Research in Translational GenomicsP20HG007243 · NHGRI · KAISER FOUNDATION RESEARCH INSTITUTE · PI HARRIS-WAI, JULIE NOEL, KOENIG, BARBARA A. · 2013 to 2016
$958k
NCATS NIH HHS UL1 TR000004NCATS NIH HHS UL1 TR000004-07S2NCATS NIH HHS UL1 TR000124NCATS NIH HHS UL1TR000124NHGRI NIH HHS P20 HG007243
6 · The paper itself

Abstract

Biorepositories, or biobanks, provide researchers with access to biological samples and associated data in support of translational research. Efficient operation and ethical stewardship of biobanks involves coordinated efforts among multiple stakeholders including researchers who manage and use the repository, institutional officials charged with its oversight, and patients and volunteers who contribute samples and data. As advancements in translational research increasingly involve more data derived from larger numbers of diverse samples, the size and governance challenges facing biorepositories have grown. We describe an approach to developing efficient and ethical biobank governance that includes all major stakeholders. This model provides a pathway for addressing the technical and ethical challenges that must be resolved to ensure biorepositories continue to support translational research.

Indexed as

Biological Specimen BanksBiomedical ResearchHumansInformed ConsentUniversitiesbiorepositoriespatientspopulationtranslational research

Identifiers

PMID25581047
PMCPMC4499012

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.