Evidence map›Paper›PMID 25577179›Full record

ArticleResearch in developmental disabilities2015

Development of a tool to describe overall health, social independence and activity limitation of adolescents and young adults with disability.

Chelsea B Deroche, Margaret M Holland, Suzanne McDermott, Julie A Royer, James W Hardin, Joshua R Mann, Deborah Salzberg, Orgul Ozturk, Lijing Ouyang

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Research in developmental disabilities, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
1.1field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 7 citations in OpenAlex.

  1. Trial
  2. Review
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 3 institutions in 1 country.

Chelsea B DerocheUniversity of South Carolina, Arnold School of Public Health, Department of Epidemiology and Biostatistics, 915 Greene Street, Columbia, SC 29208, United States. Electronic address: derochcb@email.sc.edu.
Margaret M HollandUniversity of South Carolina, Arnold School of Public Health, Department of Epidemiology and Biostatistics, 915 Greene Street, Columbia, SC 29208, United States. Electronic address: hollanmm@mailbox.sc.edu.
Suzanne McDermottUniversity of South Carolina, Arnold School of Public Health, Department of Epidemiology and Biostatistics, 915 Greene Street, Columbia, SC 29208, United States. Electronic address: SCMCDERMO@mailbox.sc.edu.
Julie A RoyerRevenue and Fiscal Affairs Office, Health and Demographics, Blanding Street, Columbia, SC 29201, United States. Electronic address: Julie.Royer@rfa.sc.gov.
James W HardinUniversity of South Carolina, Arnold School of Public Health, Department of Epidemiology and Biostatistics, 915 Greene Street, Columbia, SC 29208, United States. Electronic address: JHARDIN@mailbox.sc.edu.
Joshua R MannUniversity of South Carolina, School of Medicine, Department of Family and Preventive Medicine, 3209 Colonial Drive, Columbia, SC 29203, United States. Electronic address: Joshua.mann@uscmed.sc.edu.
Deborah SalzbergUniversity of South Carolina, Arnold School of Public Health, Department of Epidemiology and Biostatistics, 915 Greene Street, Columbia, SC 29208, United States. Electronic address: salzberd@mailbox.sc.edu.
Orgul OzturkUniversity of South Carolina, Moore School of Business, Department of Economics, 1705 College Street, Columbia, SC 29208, United States. Electronic address: odozturk@moore.sc.edu.
Lijing OuyangCenters for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, 1600 Clifton Road, Atlanta, GA 30333, United States. Electronic address: eop9@cdc.gov.
University of South Carolina · USHealth Affairs · USNational Center on Birth Defects and Developmental Disabilities · US

Funding

South Carolina Study for Adolescents and Young Adults with Rare ConditionsU01DD000776 · DD · UNIVERSITY OF SOUTH CAROLINA AT COLUMBIA · PI MCDERMOTT, SUZANNE W · 2011 to 2013
$1.2M
Intramural CDC HHS CC999999NCBDD CDC HHS 1U01DD000776-1NCBDD CDC HHS U01 DD000776
6 · The paper itself

Abstract

There is a need for research that focuses on the correlation between self-perceived quality of life (QoL) and the health outcomes of adolescents with disability transitioning to adulthood. To better understand the transition experience of adolescents and young adults with disability, we developed a questionnaire to assess the impact of disability on QoL. We recruited 174 participants who were 15-24 years old and diagnosed with Fragile X syndrome (FXS), spina bifida (SB) or muscular dystrophy (MD) and conducted an exploratory factor analysis to identify factors that characterize QoL. Five factors emerged: emotional health, physical health, independence, activity limitation, and community participation. To validate the tool, we linked medical claims and other administrative data records and examined the association of the factor scores with health care utilization and found the questionnaire can be utilized among diverse groups of young people with disability.

Indexed as

Activities of Daily LivingHealth StatusSocial BehaviorAdolescentFactor Analysis, StatisticalFemaleFragile X SyndromeHumansMaleMuscular DystrophiesPersons with DisabilitiesQuality of LifeReproducibility of ResultsSpinal DysraphismSurveys and QuestionnairesYoung AdultFactor analysisFragile X syndromeMuscular dystrophyQuality of lifeRare conditionsSpina bifidaSurvey instrument

Identifiers

PMID25577179
PMCPMC4591546
OpenAlexW1964717276

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.