Evidence map›Paper›PMID 25557496›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2015

The Patient Activation Measure: a validation study in a neurological population.

Tanya L Packer, George Kephart, Setareh Ghahari, Åsa Audulv, Joan Versnel, Grace Warner

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Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.

0numbers the graph read from it
0cells of the map it votes in
28citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

28 citing papers in PubMed.

  1. Article
  2. The Patient Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC): testing for bias across patient characteristics and languages.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
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  5. Review
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  7. Measuring patient activation: the utility of the Patient Activation Measure administered in an interview setting.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
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  8. Article
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  13. Validation of the PAM-13 instrument in the Hungarian general population 40 years old and above.The European journal of health economics : HEPAC : health economics in prevention and care · 2022
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  19. Validity and reliability of the Patient Activation Measure® (PAM®)-13 Malay version among patients with Metabolic Syndrome in primary care.Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia · 2020
    Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Tanya L PackerSchool of Occupational Therapy, Dalhousie University, Forrest Building, Rm 161, 5869 University Av., P.O. Box 15000, Halifax, NS, B3H 4R2, Canada, Tanya.packer@dal.ca.
George Kephart
Setareh Ghahari
Åsa Audulv
Joan Versnel
Grace Warner

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeTo assess the validity of the Patient Activation Measure (PAM13) of patient activation in persons with neurological conditions.

methods"The Everyday Experience of Living with and Managing a Neurological Condition" (The LINC study) surveyed 948 adults with neurological conditions residing in Canada in 2011 and 2012. Using data for 722 respondents who met coding requirements for the PAM-13, we examined the properties of the measure using principle components analysis, inter-item correlations and Cronbach's alpha to assess unidimensionality and internal consistency. Rasch modeling was used to assess item performance and scaling. Construct validity was assessed by calculating associations between the PAM and known correlates.

resultsPAM-13 provides a suitably reliable and valid instrument for research in patients with neurological conditions, but scaling problems may yield measurement error and biases for those with low levels of activation. This is of particular importance when used in clinical settings or for individual client care. Our study also suggests that measurement of activation may benefit from tailoring items and scaling to specific diagnostic groups such as people with neurological conditions, thus allowing the PAM-13 to recognize unique attributes and management challenges in those conditions.

conclusionsThe PAM-13 is an internally reliable and valid tool for research purposes. The use of categorical activation "level" in clinical settings should be done with caution.

Indexed as

AdultAgedAged, 80 and overChronic DiseaseFemaleHumansMaleNervous System DiseasesPatient ParticipationQuality of LifeReproducibility of ResultsSurveys and QuestionnairesYoung Adult

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.