ReviewHealth care analysis : HCA : journal of health philosophy and policy2017
The Benefits of Patient Involvement for Translational Research.
Review in Health care analysis : HCA : journal of health philosophy and policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
33 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient and Family Representation in Randomized Clinical Trials Published in 3 Medical and Surgical Journals: A Systematic Review.JAMA network open · 2022Pooled it
- Effectiveness of behavior change techniques to address barriers to follow-up colonoscopy: results from an online survey and randomized factorial experiment.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2025Trial
- Patient and caregiver knowledge as a driver of basic science.Nature reviews. Disease primers · 2026Article
- A Need for Societal Involvement in Promoting a Culture of Care in Animal Research.Journal of bioethical inquiry · 2026Article
- Rehabilitation research in spinal muscular atrophy: a call to action.Journal of neuromuscular diseases · 2026Review
- Public and Patient Involvement and Engagement in Clinical Trials: A Multi-Perspective Mixed-Methods Evaluation of the ROWTATE Programme.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- When Did the Term "Translational Research" Emerge-and Why?Journal of Korean medical science · 2026Article
- Integrating Patient Perspectives Into the Digital Health Technology Readiness Framework: Delphi Study.Journal of medical Internet research · 2025Article
- Developing Balanced Quality Indicators for Monitoring Virtual Care in Ambulatory Care Environments: Modified Delphi Panel Process.Journal of medical Internet research · 2025Article
- Evaluating the Involvement of People With Cancer and Informal Caregivers in the Development Process of a New Set of Quality of Life Questionnaires.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Investigating item response theory model performance in the context of evaluating clinical outcome assessments in clinical trials.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- A matrix tool to foster patient engagement in children, adolescents and young adults: report from a multistakeholder workshop.Research involvement and engagement · 2024Article
- What should we be studying? Research priorities according to women and gender-diverse individuals with sexual interest/arousal disorder and their partners.The journal of sexual medicine · 2024Article
- User Preferences and Needs for Health Data Collection Using Research Electronic Data Capture: Survey Study.JMIR medical informatics · 2024Article
- Co-creating a person-centered creative engagement intervention for Parkinson's care.Frontiers in psychology · 2024Article
- Awe and anxiety for cancer cells: connecting scientists and patients in a holistic approach of metastasis research.Research involvement and engagement · 2023Article
- Research Buddy partnership in a MD-PhD program: lessons learned.Research involvement and engagement · 2023Article
- Patient participation in defining best-practice rheumatology service provision in Aotearoa New Zealand: a qualitative study with service consumers.BMC rheumatology · 2023Article
- The impact of clinical and translational research on the quality of life during the metastatic colorectal cancer patient journey.Frontiers in oncology · 2023Review
- Home-based and community-based activities that can improve mental wellness: a protocol for an umbrella review.BMJ open · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The question we raise in this paper is, whether patient involvement might be a beneficial way to help determine and achieve the aims of translational (TR) research and, if so, how to proceed. TR is said to ensure a more effective movement ('translation') of basic scientific findings to relevant and useful clinical applications. In view of the fact that patients are supposed to be the primary beneficiaries of such translation and also have relevant knowledge based on their experience, listening to their voice early on in the innovation process might very well increase the effectiveness of the translation. After explaining how the concept of TR emerged and what it entails, this paper shows through a literature review which arguments have been put forward to promote patient involvement in health care research in a more general sense. We examine whether, and if so how, these arguments are relevant for the discourse on TR and we identify pitfalls and dilemmas. Ultimately, we conclude that it may be worthwhile to experiment with patient involvement in TR but that the design of such involvement requires careful consideration.
Indexed as
Identifiers
25537464What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.