ArticleJournal of palliative medicine2015
Conducting research interviews with bereaved family carers: when do we ask?
Article in Journal of palliative medicine, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
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Who cites it
26 citing papers in PubMed, 64 citations in OpenAlex.
- Supporting a Different Type of Death: Experiences of Family Members of Recipients of Medical Assistance in Dying.Nursing open · 2026Article
- Sigmoid volvulus part 1: Understanding patient experiences and priorities.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2026Article
- "We do what needs to be done": caregivers' experiences of healthcare and support for people with multiple long-term conditions in the last year of life.BMC palliative care · 2026Article
- Pre- and post-bereavement experiences and support needs of family caregivers in hospital settings in Türkiye: a qualitative interview study.BMC palliative care · 2026Article
- Intersectionality-Informed HIV Cure-Related Research at the End of Life: A Call to Action.International journal of environmental research and public health · 2026Article
- Can the 'Deathbed Etiquette' guide support friends and family to navigate the dying process? A qualitative study examining the views of bereaved people.Palliative care and social practice · 2026Article
- "I tell you what it's the hardest job": the experiences of family carers providing support for people with dementia at home in the last year of life.BMC geriatrics · 2025Article
- Families' experiences of end-of-life care in an acute private hospital: A qualitative study.Palliative & supportive care · 2025Article
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- Experiences of engaging a death doula: qualitative interviews with bereaved family members.Palliative care and social practice · 2023Article
- Evaluating a partnership model of hospice enabled dementia care: A three-phased monitoring, focus group and interview study.Palliative medicine · 2022Article
- Psychological Attachment Orientation and Long-Term Posttraumatic Stress Symptoms Among Family Members of ICU Patients.Critical care explorations · 2022Article
- Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach.BMC palliative care · 2021Article
- Development of an international Core Outcome Set (COS) for best care for the dying person: study protocol.BMC palliative care · 2020Article
- Developing and testing a nurse-led intervention to support bereavement in relatives in the intensive care (BRIC study): a protocol of a pre-post intervention study.BMC palliative care · 2020Article
- Unmet needs of patients with cancer in their last year of life as described by caregivers in a developing world setting: a qualitative study.BMC palliative care · 2020Article
- Dying in acute hospitals: voices of bereaved relatives.BMC palliative care · 2019Article
- Four delays of child mortality in Rwanda: a mixed methods analysis of verbal social autopsies.BMJ open · 2019Article
- When chemotherapy fails: Emotionally charged experiences faced by family caregivers of patients with advanced cancer.Patient education and counseling · 2019Article
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Corrections and comments
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Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInterviews with bereaved family carers to examine the end-of-life experience of the deceased are important tools for palliative care researchers, but the ethics of approaching the bereaved when they are grieving and vulnerable is often debated.
objectiveThe aim of this study was to explore the insights of bereaved family carers about the most appropriate time to be involved in a research interview about the end of life and death of their family member.
methodsThis qualitative study used a social constructionist framework. Twenty-two bereaved family carers of people with motor neurone disease (MND) and cancer were interviewed in Western Australia.
resultsMost family carers (86%) feel comfortable being interviewed about the death of their family member within the first 5 months of bereavement, with 43% reporting they could be interviewed within weeks after death. Family carers reported that recall would be better earlier in bereavement and felt it may be helpful to them to talk about their experiences earlier. They said bereaved people should be allowed to decide for themselves when to be involved in an interview.
conclusionsThese findings indicate that interviews with the bereaved may be most fruitful for researchers and beneficial to family carers when they are allowed to make the choice about timing for themselves, beginning weeks after the death of their family member.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.