ArticleJournal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine2015
Sleep patterns, sleep instability, and health related quality of life in parents of ventilator-assisted children.
Article in Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
18 citing papers in PubMed, 44 citations in OpenAlex.
- Efficacy of a Resourcefulness Intervention to Enhance the Physical and Mental Health of Parents Caring for Technology-dependent Children at Home: A Randomized Controlled Trial.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & PractitionersTrial
- Development and Preliminary Evaluation of a Conversational Agent Delivering Problem-Solving Therapy for Family Caregivers of Children With a Chronic Health Condition: Multiphase Mixed Methods Study.Journal of medical Internet research · 2026Article
- The burden of care: Health and wellbeing of informal caregivers of people with amyotrophic lateral sclerosis.Palliative & supportive care · 2026Article
- Magic Mothers: How Parents of Children with Invasive Mechanical Ventilation Can Make Health System Crises Disappear.Journal of developmental and physical disabilities · 2025Article
- Effectiveness of auricular acupressure in managing sleep quality, mood, and quality of life in parents of children with cancer: A pilot randomized controlled trial.Asia-Pacific journal of oncology nursing · 2024Article
- Family resilience processes among guardians caring for children and youths with leukemia.Heliyon · 2023Article
- Postal Delivery of Sleep Monitoring Devices: Research Implications.Clinical nursing research · 2023Article
- Parental sleep when their child is sick: A phased principle-based concept analysis.Journal of sleep research · 2022Review
- Variations in Sleep Characteristics and Glucose Regulation in Young Adults With Type 1 Diabetes.The Journal of clinical endocrinology and metabolism · 2022Observational
- Child Maltreatment Severity and Sleep Variability Predict Mother-Infant RSA Coregulation.Development and psychopathology · 2021Article
- Sleep-wake characteristics, daytime sleepiness, and glycemia in young adults with type 1 diabetes.Journal of clinical sleep medicine : JCSM : official publication of the American Academy of Sleep Medicine · 2021Article
- Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature.Health and quality of life outcomes · 2021Review
- Sleep, self-management, neurocognitive function, and glycemia in emerging adults with Type 1 diabetes mellitus: A research protocol.Research in nursing & health · 2020Article
- Sleep health in young children living with socioeconomic adversity.Research in nursing & health · 2020Article
- Long-Term Non-invasive Ventilation in Children: Current Use, Indications, and Contraindications.Frontiers in pediatrics · 2020Review
- The influence of psychosocial stressors and socioeconomic status on sleep among caregivers of teenagers with asthma, the Puff City study.Sleep health · 2018Article
- Daily Sleep Patterns, Sleep Quality, and Sleep Hygiene Among Parent-Child Dyads of Young Children Newly Diagnosed With Juvenile Idiopathic Arthritis and Typically Developing Children.Journal of pediatric psychology · 2016Article
- The negative impact on sleep for caregivers of children with intestinal failure on long-term parenteral nutrition.Intestinal Failure (New York, N.Y.)Article
Corrections and comments
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Authors and funding
4 authors at 3 institutions in 2 countries.
Funding
Abstract
STUDY
objectivesParents of children with chronic illnesses have poorer health related quality of life (HRQoL), shorter sleep duration, and poorer sleep quality than parents of healthy children. However, night-to-night variability of sleep in parents has not previously been considered. This study compared the sleep patterns of parents of ventilator-assisted children (VENT) and healthy, typically developing children (HEALTHY), and examined the relationship between sleep variability and perceived HRQoL.
methodsSeventy-nine mothers and 33 fathers from 42 VENT families (n = 56) and 40 HEALTHY (n = 56) families completed the SF-36 and wore an actigraph for 2 weeks. Reported bedtime and wake time, along with actigraphic total sleep time (TST), wake after sleep onset (WASO), and sleep efficiency (SE) were examined using both average values and night-tonight instability (mean square successive differences).
resultsVENT parents showed significantly later bedtimes, shorter TST, longer WASO, and lower SE than HEALTHY parents. VENT parents also exhibited greater instability in their reported wake time, WASO, and SE. Adjusting for family type and gender, greater instability of wake times, WASO and SE were related to poorer SF-36 subscale scores, while averaged sleep values were not.
conclusionsMany parents of ventilator-assisted children experience deficient sleep and show significant instability in their sleep, which was related to HRQoL. Similar to shift workers, variable sleep schedules that may result from caregiving responsibilities or stress may impact parental caregivers' health and well-being. Additional studies are needed to determine how support and other interventions can reduce sleep disruptions in parental caregivers.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.