ArticleBMJ open2014
Priority setting partnership to identify the top 10 research priorities for the management of Parkinson's disease.
Article in BMJ open, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 100 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
100 citing papers in PubMed, 4 syntheses or guidelines pooled it, 161 citations in OpenAlex.
- International research priority setting exercises in stroke: A systematic review.International journal of stroke : official journal of the International Stroke Society · 2023Pooled it
- Priorities of patients, caregivers and health-care professionals for health research - A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2020Pooled it
- Pooled it
- Patient and public engagement in priority setting: A systematic rapid review of the literature.PloS one · 2018Pooled it
- Managing fatigue in Parkinson's disease: Preparing for a randomized controlled trial.Journal of Parkinson's disease · 2025Trial
- Feasibility, safety and efficacy of multi-dose vagus nerve stimulation in Parkinson's disease: a double-blind, randomised sham-controlled proof-of-concept study.Journal of neurology · 2025Trial
- A Metacognitive Strategy Intervention for People With Parkinson's Disease: Pilot and Feasibility Trial.The American journal of occupational therapy : official publication of the American Occupational Therapy Association · 2025Trial
- Client Perceptions of the Individual Packer Managing Fatigue Program: A Mixed-Method Evaluation.OTJR : occupation, participation and health · 2024Trial
- Trial
- Trial
- Effectiveness of robotic balance training on postural instability in patients with mild Parkinson's disease: A pilot, single blind, randomized controlled trial.Journal of rehabilitation medicine · 2021Trial
- Cost-effectiveness of the PDSAFE personalised physiotherapy intervention for fall prevention in Parkinson's: an economic evaluation alongside a randomised controlled trial.BMC neurology · 2020Trial
- Sensory focused exercise improves anxiety in Parkinson's disease: A randomized controlled trial.PloS one · 2020Trial
- Factors associated with falling in early, treated Parkinson's disease: The NET-PD LS1 cohort.Journal of the neurological sciences · 2017Trial
- Encoding strategy training and self-reported everyday prospective memory in people with Parkinson disease: a randomized-controlled trial.The Clinical neuropsychologistTrial
- Article
- Do we need drugs for psychiatric symptoms specifically for Parkinson's disease?Journal of Parkinson's disease · 2026Review
- Assessing Shifts in Research Priority Areas From the Neurological Community Before and After the COVID-19 Pandemic.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Article
- Setting research priorities for palliative and end-of-life care: a James Lind Alliance Priority Setting Partnership Refresh.BMJ open · 2026Article
40 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThis priority setting partnership was commissioned by Parkinson's UK to encourage people with direct and personal experience of the condition to work together to identify and prioritise the top 10 evidential uncertainties that impact on everyday clinical practice for the management of Parkinson's disease (PD).
settingThe UK.
participantsAnyone with experience of PD including: people with Parkinson's (PwP), carers, family and friends, healthcare and social care professionals. Non-clinical researchers and employees of pharmaceutical or medical devices companies were excluded. 1000 participants (60% PwP) provided ideas on research uncertainties, 475 (72% PwP) initially prioritised them and 27 (37% PwP) stakeholders agreed a final top 10.
methodsUsing a modified nominal group technique, participants were surveyed to identify what issues for the management of PD needed research. Unique research questions unanswered by current evidence were identified and participants were asked to identify their top 10 research priorities from this list. The top 26 uncertainties were presented to a consensus meeting with key stakeholders to agree the top 10 research priorities.
results1000 participants provided 4100 responses, which contained 94 unique unanswered research questions that were initially prioritised by 475 participants. A consensus meeting with 27 stakeholders agreed the top 10 research priorities. The overarching research aspiration was an effective cure for PD. The top 10 research priorities for PD management included the need to address motor symptoms (balance and falls, and fine motor control), non-motor symptoms (sleep and urinary dysfunction), mental health issues (stress and anxiety, dementia and mild cognitive impairments), side effects of medications (dyskinesia) and the need to develop interventions specific to the phenotypes of PD and better monitoring methods.
conclusionsThese research priorities identify crucial gaps in the existing evidence to address everyday practicalities in the management of the complexities of PD.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.