ArticleHealth and quality of life outcomes2014
Quality of life ratings in dementia care--a cross-sectional study to identify factors associated with proxy-ratings.
Article in Health and quality of life outcomes, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Convergent validity of EQ-5D with core outcomes in dementia: a systematic review.Health and quality of life outcomes · 2022Pooled it
- Proxy rated quality of life of care home residents with dementia: a systematic review.International psychogeriatrics · 2017Pooled it
- Trial
- Item distribution and inter-rater reliability of the German version of the quality of life in Alzheimer's disease scale (QoL-AD) proxy for people with dementia living in nursing homes.BMC geriatrics · 2018Trial
- Quality of life and associated characteristics in long-term care residents with advanced dementia in Macao: a cross-sectional study.BMC geriatrics · 2024Article
- Inter-rating reliability of the Swiss easy-read integrated palliative care outcome scale for people with dementia.PloS one · 2023Article
- Effects of an individualised nutritional intervention to tackle malnutrition in nursing homes: a pre-post study.European geriatric medicine · 2022Article
- Improving caring quality for people with dementia in nursing homes using IPOS-Dem: A stepped-wedge cluster randomized controlled trial protocol.Journal of advanced nursing · 2021Article
- Relationship between the severity of agitation and quality of life in residents with dementia living in German nursing homes - a secondary data analysis.BMC psychiatry · 2021Article
- Adaptation of the DEMQOL-Proxy for routine use in care homes: a cross-sectional study of the reliability and validity of DEMQOL-CH.BMJ open · 2019Article
- Development of a quality of life questionnaire for nursing home residents in mainland China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Article
- More staff = better quality of life for people with dementia? results of a secondary data analysis in German shared-housing arrangements.Israel journal of health policy research · 2019Article
- Quality of life in persons with dementia using regional dementia care network services in Germany: a one-year follow-up study.Health and quality of life outcomes · 2018Observational
- Quality of life in small-scaled homelike nursing homes: an 8-month controlled trial.Health and quality of life outcomes · 2018Article
- Item distribution, internal consistency and inter-rater reliability of the German version of the QUALIDEM for people with mild to severe and very severe dementia.BMC geriatrics · 2016Article
- People with dementia in nursing home research: a methodological review of the definition and identification of the study population.BMC geriatrics · 2016Review
- Characteristics Associated with Quality of Life in Long-Term Care Residents with Dementia: A Cross-Sectional Study.Dementia and geriatric cognitive disorders · 2016Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveQuality of life (QoL) is one major outcome parameter in the care for people with dementia (PwD); however, their assessment is lacking a gold standard. The purpose of this study was to evaluate potential factors associated with nurse-rated quality of life of PwD in nursing homes in Berlin, Germany.
methodAn explorative cross-sectional study was performed in five nursing homes to evaluate QoL. Nurses rated the QoL for all residents with dementia by completing two different standardised assessments (ADRQL, QUALIDEM). Potential associated factors were evaluated concerning resident and nurse related factors. A fixed-effects models of analysis of co-variance (ANCOVA) was used to analyse effects of assumed associated factors of the major outcome parameters ADRQL and QUALIDEM. Associated factors were severity of dementia (GDS), challenging behaviour (CMAI), and other characteristics. Regarding the nurses, burnout (MBI), satisfaction with life (SWLS), attitude (ADQ) and empathy toward residents (JSPE), as well as circumstances of the ratings and days worked in advance of the ratings were assessed.
resultsIn total, 133 PwD and 88 nurses were included. Overall, the ratings show moderate to high QoL in every subscale independent of the instrument used. Assumed confounders relevantly influenced 14 out of 17 ratings. Predominantly, residents' challenging behaviour, nurses' burnout and satisfaction with life as well as the circumstances of the ratings are significant and clinically relevant associated factors.
conclusionAssessing QoL of PwD is acknowledged as a central component of health care and health care research. In later stages of dementia, proxy-reported information obtained from quality of life questionnaires is and will continue to be essential in this research. However, methodological issues that underline this research - matters of measurement and instrument validity - must receive more attention. Associated factors in proxy-ratings have to be routinely assessed in order to get more valid and comparable estimates.
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